Evidence map›Paper›PMID 33501381›Full record

ArticleWellcome open research2020

Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group.

Claire C Austin, Alexander Bernier, Louise Bezuidenhout, Juan Bicarregui, Timea Biro, Anne Cambon-Thomsen, Stephanie Russo Carroll, Zoe Cournia, Piotr Wojciech Dabrowski, Gayo Diallo and 27 more

Open access · goldAbstract read
In one paragraph

Article in Wellcome open research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
2.2field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 20 citations in OpenAlex.

  1. Ethical Considerations for Clinical Data Sharing in Craniofacial Research: Recommendations From a Multidisciplinary Working Group.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  2. Programmatic access to ICTV virus taxonomy through a public ontology API.bioRxiv : the preprint server for biology · 2026
    Article
  3. Article
  4. Review
  5. Article
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  9. Review
  10. Review
  11. Article
  12. Community Readiness for Local COVID-19 Management.Frontiers in research metrics and analytics · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

37 authors at 20 institutions in 10 countries.

Claire C AustinEnvironment and Climate Change Canada, 351 boul. St-Joseph, Gatineau, Quebec, K1A 0H3, Canada.ORCID https://orcid.org/0000-0001-9138-5986
Alexander BernierCentre of Genomics and Policy, McGill University, 740, avenue Dr. Penfield, suite 5200, Montreal, Quebec, Canada.ORCID https://orcid.org/0000-0001-8615-8375
Louise BezuidenhoutInstitute for Science, Innovation and Society, University of Oxford, 64 Banbury Road, Oxford, OX2 6PN, UK.ORCID https://orcid.org/0000-0003-4328-3963
Juan BicarreguiUKRI-STFC Rutherford Appleton Laboratory, Harwell Campus, Didcot, OX11 0QX, UK.ORCID https://orcid.org/0000-0001-5250-7653
Timea BiroDigital Repository of Ireland, Royal Irish Academy, 19 Dawson St, Dublin 2, D02 HH58, Ireland.ORCID https://orcid.org/0000-0002-8900-8978
Anne Cambon-ThomsenCNRS, Inserm and University Toulouse III Paul Sabatier, Toulouse, France.ORCID https://orcid.org/0000-0001-8793-3644
Stephanie Russo CarrollNative Nations Institute at the Udall Center for Studies in Public Policy and the College of Public Health, University of Arizona, 803 E First ST, Tucson, AZ, 85719, USA.ORCID https://orcid.org/0000-0002-8996-8071
Zoe CourniaBiomedical Research Foundation, Academy of Athens, 4 Soranou Ephessiou, Athens, 11527, Greece.ORCID https://orcid.org/0000-0001-9287-364X
Piotr Wojciech DabrowskiHTW Berlin University of Applied Science, Wilhelminenhofstraße 75A, Berlin, 12459, Germany.ORCID https://orcid.org/0000-0003-4893-805X
Gayo DialloBPH INSERM1219 & LaBRI, Univ. Bordeaux, 146 rue Léo Saignat, F-33000, Bordeaux, France.
Thomas DuflotNormandie Univ, UNIROUEN, CHU Rouen, Department of Clinical Research, Rouen University Hospital, 1 Rue de Germont, Rouen Cedex, 76031, France.ORCID https://orcid.org/0000-0002-8730-284X
Leyla GarciaZB MED Information Centre for Life Sciences, Gleueler Str 60, Cologne, 50931, Germany.ORCID https://orcid.org/0000-0003-3986-0510
Sandra GesingUniversity of Notre Dame Center for Research Computing, 814 Flanner Hall, Notre Dame, IN, 46556, USA.
Alejandra Gonzalez-BeltranUKRI-STFC Rutherford Appleton Laboratory, Harwell Campus, Didcot, OX11 0QX, UK.ORCID https://orcid.org/0000-0003-3499-8262
Anupama GururajNational Institute of Allergy and Infectious Diseases, National Institutes of Health, 5601 Fishers Lane, Rockville, MD, 20852, USA.ORCID https://orcid.org/0000-0002-4221-4379
Natalie HarrowerDigital Repository of Ireland, Royal Irish Academy, 19 Dawson St, Dublin 2, D02 HH58, Ireland.ORCID https://orcid.org/0000-0002-7487-4881
Dawei LinNational Institute of Allergy and Infectious Diseases, National Institutes of Health, 5601 Fishers Lane, Rockville, MD, 20852, USA.
Claudia MedeirosInstitute of Computing, University of Campinas, Av Albert Einstein 1251, Campinas, São Paulo, 13082-853, Brazil.ORCID https://orcid.org/0000-0003-1908-4753
Eva MéndezUniversidad Carlos III de Madrid, C/ Madrid, 128, Getafe (Madrid), 28903, Spain.ORCID https://orcid.org/0000-0002-5337-4722
Natalie Meyers250D Navari Center for Digital Scholarship, Hesburgh Library, University of Notre Dame, Notre Dame, IN, 46556, USA.ORCID https://orcid.org/0000-0001-6441-6716
Daniel MietchenSchool of Data Science, University of Virginia, P.O. Box 400249, Charlottesville, VA, 22904, USA.ORCID https://orcid.org/0000-0001-9488-1870
Rajini NagraniLeibniz Institute for Prevention Research and Epidemiology, Achterstrasse 30, Bremen, 28359, Germany.ORCID https://orcid.org/0000-0002-1708-2319
Gustav NilsonneKarolinska Institutet & Swedish National Data Service, Nobels väg 9, Stockholm, 17177, Sweden.ORCID https://orcid.org/0000-0001-5273-0150
Simon ParkerCancer Research UK, 2 Redman Place, London, E20 1JQ, UK.
Brian PickeringUniversity of Southampton, University Road, Southampton, SO17 1BJ, UK.ORCID https://orcid.org/0000-0002-6815-2938
Amy PientaICPSR, University of Michigan, P.O. Box 1248, Ann Arbor, MI, 48106-1248, USA.
Panayiota PolydoratouOpenEdition/Department of Library Science, Archives and Information Systems, International Hellenic University, P.O. Box 141, Thessaloniki, 57400, Greece.ORCID https://orcid.org/0000-0002-7551-8002
Fotis PsomopoulosInstitute of Applied Biosciences (INAB), Centre for Research and Technology Hellas (CERTH), Thessaloniki, 57001, Greece.ORCID https://orcid.org/0000-0002-0222-4273
Stephanie RennesINRAE National Research Institute for Agriculture, Food and Environment, 147 Rue de l'Université, Paris, 75007, France.ORCID https://orcid.org/0000-0003-1458-7773
Robyn RoweLaurentian University, Ontario, P3E 2C6, Canada.ORCID https://orcid.org/0000-0003-0591-6213
Susanna-Assunta SansoneOxford e-Research Centre, Department of Engineering Science, University of Oxford, 7 Keble Road, Oxford, OX1 3QG, UK.ORCID https://orcid.org/0000-0001-5306-5690
Hugh ShanahanDepartment of Computer Science, Royal Holloway, University of London, Bedford Building, Egham, TW20 0EX, UK.ORCID https://orcid.org/0000-0003-1374-6015
Lina SitzIndepedent Researcher, Strada Costiera, Trieste, 34151, Italy.ORCID https://orcid.org/0000-0002-6333-4986
Joanne StocksDivision of Rheumatology, Orthopedics and Dermatology, School of Medicine, University of Nottingham, Queens Medical Centre, Nottingham, NG7 2UH, UK.ORCID https://orcid.org/0000-0002-7800-6002
Marcos Roberto Tovani-PaloneRibeirão Preto Medical School, University of São Paulo, São Paulo, Brazil.
Mary UhlmansiekResearch Data Alliance - US Region (RDA-US), c/o Ronin Institute, 127 Haddon Place, Montclair, NJ, 07043, USA.ORCID https://orcid.org/0000-0002-7949-2057
Research Data Alliance
National Institutes of Health · USRoyal Irish Academy · IERutherford Appleton Laboratory · GBUniversity of Notre Dame · USUniversity of Oxford · GBAcademy of Athens · GRAlliance Data (United States) · USCentre for Research and Technology Hellas · GRCentre National de la Recherche Scientifique · FREnvironment and Climate Change Canada · CAHTW Berlin - University of Applied Sciences · DEInstitute of Cancer Research · GBInstitut National de Recherche pour l'Agriculture, l'Alimentation et l'Environnement · FRInternational Hellenic University · GRKarolinska Institutet · SELaurentian University · CALeibniz Institute for Prevention Research and Epidemiology - BIPS · DEMcGill University · CANormandie Université · FRUniversidad Carlos III de Madrid · ES

Funding

NATIONAL ADDICTION AND HIV DATA ARCHIVE PROGRAM. APRIL 1, 2019 - MARCH 31, 2024. N01DA-19-5587.75N95019C00017 · NIDA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI PIENTA, AMY · 2019 to 2023
$2.7M
Biotechnology and Biological Sciences Research Council BB/E025080/1NIDA NIH HHS 75N95019C00017Wellcome Trust
6 · The paper itself

Abstract

The systemic challenges of the COVID-19 pandemic require cross-disciplinary collaboration in a global and timely fashion. Such collaboration needs open research practices and the sharing of research outputs, such as data and code, thereby facilitating research and research reproducibility and timely collaboration beyond borders. The Research Data Alliance COVID-19 Working Group recently published a set of recommendations and guidelines on data sharing and related best practices for COVID-19 research. These guidelines include recommendations for clinicians, researchers, policy- and decision-makers, funders, publishers, public health experts, disaster preparedness and response experts, infrastructure providers from the perspective of different domains (Clinical Medicine, Omics, Epidemiology, Social Sciences, Community Participation, Indigenous Peoples, Research Software, Legal and Ethical Considerations), and other potential users. These guidelines include recommendations for researchers, policymakers, funders, publishers and infrastructure providers from the perspective of different domains (Clinical Medicine, Omics, Epidemiology, Social Sciences, Community Participation, Indigenous Peoples, Research Software, Legal and Ethical Considerations). Several overarching themes have emerged from this document such as the need to balance the creation of data adherent to FAIR principles (findable, accessible, interoperable and reusable), with the need for quick data release; the use of trustworthy research data repositories; the use of well-annotated data with meaningful metadata; and practices of documenting methods and software. The resulting document marks an unprecedented cross-disciplinary, cross-sectoral, and cross-jurisdictional effort authored by over 160 experts from around the globe. This letter summarises key points of the Recommendations and Guidelines, highlights the relevant findings, shines a spotlight on the process, and suggests how these developments can be leveraged by the wider scientific community.

Indexed as

Clinical ResearchCOVID-19EpidemiologyFAIR and CARE principlesOmicsOpen scienceSharing research outputs in pandemics caused by infectious diseasesSocial Science

Identifiers

PMID33501381
PMCPMC7808050.2
OpenAlexW3105389930

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.