Evidence map›Paper›PMID 33496987›Full record

ArticleJournal of genetic counseling2021

Pregnant Hispanic women's views and knowledge of prenatal genetic testing.

Robin L Page, Christina Murphey, Yahyahan Aras, Lei-Shih Chen, Ryan Loftin

Open access · hybridAbstract read
In one paragraph

Article in Journal of genetic counseling, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
4.3field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 16 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Robin L PageTexas A&M University College of Nursing, College Station, TX, USA.ORCID 0000-0001-7223-412X
Christina MurpheyCollege of Nursing & Health Sciences, Texas A&M University-Corpus Christi, Corpus Christi, TX, USA.
Yahyahan ArasDepartment of Counseling and Educational Psychology, Texas A&M University-Corpus Christi, Corpus Christi, TX, USA.
Lei-Shih ChenTexas A&M University College of Education and Human Development, College Station, TX, USA.
Ryan LoftinDriscoll Health System, Maternal-Fetal Medicine, Corpus Christi, TX, USA.
Texas A&M University · USTexas A&M University – Corpus Christi · USChristus Health · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Pregnant Hispanic women are underserved with their needs for genetic counseling, despite birth defects remaining the leading cause of infant death in the United States. We present the qualitative findings of a study to understand knowledge and perceptions of prenatal testing in a sample of hard-to-reach underrepresented Hispanic pregnant women in South Texas. The sample for this study was 10 Hispanic pregnant women who were recruited from a high-risk prenatal clinic in South Texas in 2019. The semi-structured interview questions were created based on the researchers' clinical experiences with this population and were designed to examine knowledge and perceptions of participants toward prenatal testing. Analysis of the qualitative data yielded several themes related to prenatal testing: (a) knowledge, (b) confusion, (c) partner's and support persons' opinions, (d) information sharing from providers, (e) psychological benefits, (f) preparation for baby, (g) obstacles, (h) religious influence, and (i) educational tools to assist with understanding. Women's understanding and knowledge of prenatal testing was limited, specifically regarding its purpose, how it works, the benefits, and why it was recommended by their provider. Lack of clarity about why they should take the test and its risks for them and their babies was perceived as something that could impede their acceptance of prenatal testing. All participants agreed that healthcare providers should share more information about prenatal testing in a way that uses 'everyday language' so that they can understand it better. All respondents mentioned that prenatal testing provides information about their baby's health conditions, alleviates their stress and concerns, and psychologically prepares them and their family for what is to come. Identifying ways to increase culturally appropriate education delivered by genetic counselors such as through the adoption of telemedicine and mobile technology can help fill the gap for this underserved population.

Indexed as

Genetic TestingPrenatal CareFemaleGenetic CounselingHealth Knowledge, Attitudes, PracticeHealth PersonnelHispanic or LatinoHumansPregnancyattitudesbeliefsgenetic counselinggenetic literacygenetic testingprenatal diagnosispsychosocialunderrepresented populations

Identifiers

PMID33496987
PMCPMC8248231
OpenAlexW3123071341

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.