Evidence map›Paper›PMID 33495260›Full record

ArticleBMJ open2021

Determining the role and responsibilities of the Australian epilepsy nurse in the management of epilepsy: a study protocol.

Frances Rapport, Karen Hutchinson, Geoffrey K Herkes, Andrew Bleasel, Armin Nikpour, Tayhla Ryder, Chong Wong, Melissa Bartley, Carol Ireland, Honor Coleman and 6 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.3field-weighted citation impact, top 46% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Article
  3. Further advances in epilepsy.Journal of neurology · 2023
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors at 7 institutions in 2 countries.

Frances RapportAustralian Institute of Health Innovation, Macquarie University, North Ryde, New South Wales, Australia frances.rapport@mq.edu.au.ORCID 0000-0002-4428-2826
Karen HutchinsonAustralian Institute of Health Innovation, Macquarie University, North Ryde, New South Wales, Australia.
Geoffrey K HerkesSydney Medical School, University of Sydney, Sydney, New South Wales, Australia.
Andrew BleaselSydney Medical School, University of Sydney, Sydney, New South Wales, Australia.
Armin NikpourSydney Medical School, University of Sydney, Sydney, New South Wales, Australia.
Tayhla RyderAustralian Institute of Health Innovation, Macquarie University, North Ryde, New South Wales, Australia.
Chong WongSydney Medical School, University of Sydney, Sydney, New South Wales, Australia.
Melissa BartleyDepartment of Neurology, Westmead Hospital, Westmead, New South Wales, Australia.
Carol IrelandEpilepsy Action Australia, North Ryde, New South Wales, Australia.
Honor ColemanEpilepsy Foundation, Melbourne, Victoria, Australia.
Lisa ToddEpilepsy Action Australia, North Ryde, New South Wales, Australia.
Wendy GrootEpilepsy Australia, Melbourne, Victoria, Australia.
Mike KerrDepartment of Psychological Medicine and Clinical Neurosciences, Cardiff University, Cardiff, Wales, UK.
Sanjyot VagholkarMQ Health General Practice, Macquarie University, North Ryde, New South Wales, Australia.
Graeme ShearsEpilepsy Foundation, Melbourne, Victoria, Australia.
Jeffrey BraithwaiteAustralian Institute of Health Innovation, Macquarie University, North Ryde, New South Wales, Australia.ORCID 0000-0003-0296-4957
Macquarie University · AUThe University of Sydney · AUEpilepsy Foundation · AUCardiff University · GBLaunceston General Hospital · AUThe University of Melbourne · AUWestmead Hospital · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionEpilepsy is a common neurological condition affecting between 3% and 3.5% of the Australian population at some point in their lifetime. The effective management of chronic and complex conditions such as epilepsy requires person-centred and coordinated care across sectors, from primary to tertiary healthcare. Internationally, epilepsy nurse specialists are frequently identified as playing a vital role in improving the integration of epilepsy care and enhancing patient self-management. This workforce has not been the focus of research in Australia to date. METHODS AND ANALYSIS: This multistage mixed-method study examines the role and responsibilities of epilepsy nurses, particularly in primary and community care settings, across Australia, including through the provision of a nurse helpline service. A nationwide sample of 30 epilepsy nurses will be purposively recruited via advertisements distributed by epilepsy organisations and through word-of-mouth snowball sampling. Two stages (1 and 3) consist of a demographic questionnaire and semistructured interviews (individual or group) with epilepsy nurse participants, with the thematic data analysis from this work informing the areas for focus in stage 3. Stage 2 comprises of a retrospective descriptive analysis of phone call data from Epilepsy Action Australia's National Epilepsy Line service to identify types of users, their needs and reasons for using the service, and to characterise the range of activities undertaken by the nurse call takers. ETHICS AND DISSEMINATION: Ethics approval for this study was granted by Macquarie University (HREC: 52020668117612). Findings of the study will be published through peer-reviewed journal articles and summary reports to key stakeholders, and disseminated through public forums and academic conference presentations. Study findings will also be communicated to people living with epilepsy and families.

Indexed as

EpilepsyResearch DesignAustraliaHumansRetrospective StudiesSurveys and Questionnairesepilepsyprimary carequalitative research

Identifiers

PMID33495260
PMCPMC7839898
OpenAlexW3123660834

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.