ArticleJournal of pediatric psychology2021
Parental Psychosocial Distress in Pediatric Sickle Cell Disease and Chronic Pain.
Article in Journal of pediatric psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Mental and Emotional Health of Caregivers of Youth with Sickle Cell Disease: A Systematic Review.Journal of health care for the poor and underserved · 2023Pooled it
- Effects of resilience training for mothers on maternal resilience and children's pain in pediatric burn units in a randomized controlled trial.Scientific reports · 2025Trial
- Trial
- Chronic pain lived experience of pediatric sickle cell disease: A qualitative study.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2026Article
- Receipt of respite services among families of children and youth with special health care needs: A population-based cohort study.International journal of population data science · 2026Article
- Exploring the quality of life of caregivers of children with sickle cell disease in a secondary health facility in Ghana.Ghana medical journal · 2025Article
- Caregiver and provider perspectives on developmental services for children with sickle cell disease: a mixed methods analysis.Frontiers in pediatrics · 2025Article
- Article
- Sleep experiences of parents of children 18 years or younger with sickle cell disease during the COVID-19 pandemic: a qualitative study.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2024Article
- Impact of maternal depression on malnutrition treatment outcomes in older children with sickle cell anemia.BMC nutrition · 2024Article
- Article
- Bidirectional processes linking social determinants of health and pediatric sickle cell anemia management: A qualitative study.Pediatric blood & cancer · 2023Article
- Family Caregiver Acceptability of Assessing Caregiver Adverse Childhood Experiences (ACEs) and Distress in Pediatric Specialty Care.Children (Basel, Switzerland) · 2023Article
- Identifying Chronic Pain Subgroups in Pediatric Sickle Cell Disease: A Cluster-Analytic Approach.The Clinical journal of pain · 2022Article
- Mental health assessment of youth with sickle cell disease and their primary caregivers during the COVID-19 pandemic.Pediatric blood & cancer · 2022Article
- The distinct longitudinal impact of pain catastrophizing on pain interference among youth living with sickle cell disease and chronic pain.Journal of behavioral medicine · 2022Article
- Music as Supportive Care for Young Children with Sickle Cell Disease and their Parents: A Three-phase Qualitative Exploration into the Cultural Relevance of Active Music Engagement with Black Families.Global advances in integrative medicine and healthArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundPediatric sickle cell disease (SCD) management can result in considerable caregiver distress. Parents of youth with chronic SCD pain may face the additional challenge of managing children's chronic pain and chronic illness. This study examined associations between parent psychological distress and child functioning and the moderating role of chronic pain among youth with SCD.
methodsYouth presenting to pediatric outpatient comprehensive SCD clinics and their primary caregivers completed a battery of questionnaires. Parents reported on parenting stress, parent mental and physical health, and family functioning. Children completed measures of pain characteristics, depressive symptoms, catastrophic thinking, functional disability, and quality of life.
resultsPatients (N = 73, Mage = 14.2 years, 57% female) and their caregivers (Mage = 41.1 years, 88% mothers, 88% Black) participated. Worse parent functioning was associated with worse child pain, functioning, quality of life, and depressive symptoms. Beyond the effects of SCD, chronic SCD pain magnified the negative associations between parenting stress frequency and child quality of life, parent physical health and child quality of life, and parent depressive symptoms and child depressive symptoms.
conclusionsChronic pain may exacerbate the relations between parent and child functioning beyond the effects of SCD alone. The management of both SCD and chronic pain may present additional challenges for parents that limit their psychosocial functioning. Family-focused interventions to support parents and youth with chronic SCD pain are warranted to optimize health outcomes.
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