Evidence map›Paper›PMID 33474662›Full record

ArticleJournal of autism and developmental disorders2023

Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti.

Monique Botha, Jacqueline Hanlon, Gemma Louise Williams

Open access · hybridAbstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 124 papers, 7 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
124citing papers in PubMed, 7 pooled it
34.1field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

124 citing papers in PubMed, 7 syntheses or guidelines pooled it, 372 citations in OpenAlex.

  1. Disability barriers autistic girls face in secondary education: A systematic review.Autism : the international journal of research and practice · 2025
    Pooled it
  2. Improving Student Attitudes Toward Autistic Individuals: A Systematic Review.Journal of autism and developmental disorders · 2024
    Pooled it
  3. Pooled it
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  8. Program for the Education and Enrichment of Relational Skills (PEERSJournal of autism and developmental disorders · 2025
    Trial
  9. Trial
  10. Article
  11. Article
  12. Some (but not all) Pragmatic Inferences are Difficult for Autistic Children.Journal of autism and developmental disorders · 2026
    Article
  13. Article
  14. Rethinking Clinical Visibility in Autistic Females: Autistic Camouflaging and Menstrual Cycle Variability.International journal of environmental research and public health · 2026
    Review
  15. Article
  16. Review
  17. Article
  18. Review
  19. Article
  20. Neurodiversity-Affirming Applied Behavior Analysis.Behavior analysis in practice · 2026
    Article

64 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 1 country.

Monique BothaSchool of Psychology, University of Surrey, Stag Hill Campus, Guildford, Surrey, GU2 7XH, UK. m.d.botha@stir.ac.uk.ORCID http://orcid.org/0000-0002-5935-9654
Jacqueline HanlonLLM Gender, Conflict & Human Rights, Transitional Justice Institute, Ulster University, Jordanstown, UK.
Gemma Louise WilliamsSchool of Humanities, University of Brighton, Brighton, Sussex, BN2 4AT, UK.
University of Brighton · GBUniversity of Stirling · GBUniversity of Ulster · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In response to Vivanti's 'Ask The Editor…' paper [Journal of Autism and Developmental Disorders, 50(2), 691-693], we argue that the use of language in autism research has material consequences for autistic people including stigmatisation, dehumanisation, and violence. Further, that the debate in the use of person-first language versus identity-first language should centre first and foremost on the needs, autonomy, and rights of autistic people, so in to preserve their rights to self-determination. Lastly, we provide directions for future research.

Indexed as

Autism Spectrum DisorderAutistic DisorderHumansLanguagePersonal AutonomyAutismIdentity-first languagePerson-first languageRights-based approachStigma

Identifiers

PMID33474662
PMCPMC7817071
OpenAlexW3125099730

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.