ArticleInternational journal of mental health systems2021
Qualitative research of informal caregivers' personal experiences caring for older adults with dementia in Lithuania.
Article in International journal of mental health systems, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Meta-synthesis of qualitative research on family caregiving experiences for individuals with cognitive impairment: a systematic review.Frontiers in public health · 2025Pooled it
- Self-Efficacy and Caregiving Competence in Family Caregivers of Patients Undergoing Renal Replacement Therapy: A Correlational Study.Nursing reports (Pavia, Italy) · 2026Article
- Informal caregivers' perspectives on caring for elderly people in Romania: a qualitative study.BMC health services research · 2026Article
- Factors associated with anxiety, stress, depression and burden among informal caregivers of patients with dementia: a cross-sectional study.BMC nursing · 2025Article
- The needs of the family caregivers of patients with end-stage chronic obstructive pulmonary disease: a qualitative study in Iran.BMC nursing · 2025Article
- Care mobilities and associated contexts of hospital-based informal caregiving in Nigeria: Towards an explanatory framework.PloS one · 2025Article
- The Saskatchewan Caregiver Experience Study: Support Priorities of Caregivers of Older Adults.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024Article
- There is 'no cure for caregiving': the experience of women caring for husbands living with Parkinson's disease.International journal of qualitative studies on health and well-being · 2024Article
- Designing and Evaluating IT Applications for Informal Caregivers: Scoping Review.Journal of medical Internet research · 2024Article
- Older people's experience and related factors while receiving home-based long-term care services: a qualitative study.BMC nursing · 2024Article
- Article
- Perceptions and meanings of living with Parkinson's disease: an account of caregivers lived experiences.International journal of qualitative studies on health and well-being · 2021Article
- Informal Care in the Context of Long-term Health Care for the Elderly in Slovenia: a Qualitative Study.Zdravstveno varstvo · 2021Article
- Perceptions of Stress and Engagement in High-Intensity Caregiving: A Cross-Sectional Study in Lithuania.Inquiry : a journal of medical care organization, provision and financingArticle
- Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey.MDM policy & practiceArticle
- Learner experiences of a carer-focused massive open online course on psychosis: A qualitative study.Digital healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundIn many communities around the world, informal caregivers of older adults with dementia represent an essential, yet often underappreciated, source of long-term care. The present study aimed to determine the personal experiences of such caregivers, which could be instrumental for developing means of improving the quality of care for both care receivers and their informal caregivers.
methodsFive semi-structured focus-group discussions were held. The participants (n = 31) were all informal caregivers of older adults with dementia. The focus-group discussions were audio-recorded and transcribed verbatim. An inductive approach was used, and thematic data analysis was applied.
resultsFour thematic categories were identified: learning caregiving through personal experience; implications of caregiving on social wellbeing; caregivers' contradictory emotions regarding care delivery; and addressing challenges regarding care provision.
conclusionsThis study revealed, among the informal caregivers, a variety of experiences, contradicting feelings, and problem-solving strategies relating to the care of older adults with mental disorders. Becoming an effective caregiver involves professional and psychological development. Developing caregiving skills, supportive environment and positive attitude can help facilitate providing care. Caregiving largely impacts the emotional, physical, and social wellbeing of the person; thus, comprehensive approaches are needed to prevent burnout and associated social disadvantages.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.