ArticleClinical rehabilitation2021
"Just tell me in a simple way": A qualitative study on opportunities to improve the transition from acute hospital care to home from the perspectives of patients with traumatic brain injury, families, and providers.
Article in Clinical rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06867081 (Effectiveness of a Customized Digital Platform to Increase Coordination of Care and Uptake of Evidence-based Practices), which is not on this map. Cited by 14 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Effectiveness of a Customized Digital Platform to Increase Coordination of Care and Uptake of Evidence-based Practices: a Protocol for a Stepped-wedge Cluster Randomized Trial in Quebec
Who cites it
14 citing papers in PubMed.
- Building Research Capacity to Enroll Spanish-Speaking Patients and Families in a Traumatic Brain Injury Transitional Care Intervention.Western journal of nursing research · 2026Article
- Assessing family quality of life in families of people with brain injuries: a Delphi study.Health and quality of life outcomes · 2026Article
- Informing the Development of a High-Quality Emergency Department Discharge Process: Insights From Patients and Practitioners.The Permanente journal · 2026Article
- Challenges in the Transition from Acute Hospital Care to Home for Spanish-Speaking Latino Patients with TBI and Families: Perspectives of Healthcare Providers and Interpreters.Journal of racial and ethnic health disparities · 2025Article
- Social determinants and follow-up care after emergency department discharge for traumatic intracranial hemorrhage.Heliyon · 2025Article
- Advances in Neurorehabilitation: Strategies and Outcomes for Traumatic Brain Injury Recovery.Cureus · 2024Review
- Follow-up after major traumatic injury: a survey of services in Australian and New Zealand public hospitals.BMC health services research · 2024Article
- Article
- Caregiving Preparedness and Caregiver Burden in Omani Family Caregivers for Patients with Acquired Brain Injury.Sultan Qaboos University medical journal · 2023Observational
- The BETTER Traumatic Brain Injury Transitional Care Intervention: A Feasibility Study.Western journal of nursing research · 2023Article
- "If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention.Brain injury · 2023Article
- Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation: Protocol for Evaluation and Rehabilitation of Mobility Across Continuums of Care.JMIR research protocols · 2022Article
- Design, methods, and baseline characteristics of the Brain Injury Education, Training, and Therapy to Enhance Recovery (BETTER) feasibility study: a transitional care intervention for younger adult patients with traumatic brain injury and caregivers.Current medical research and opinion · 2022Article
- Negotiating the Transition from Acute Hospital Care to Home: Perspectives of Patients with Traumatic Brain Injury, Caregivers, and Healthcare Providers.Journal of integrated care (Brighton, England) · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectiveThe purpose of this study was to identify areas to improve the transition from acute hospital care to home for patients with traumatic brain injury and their families.
designQualitative, descriptive.
settingLevel I trauma centered located in the Southeastern United States. SUBJECTS: A total of 36 participants (12 patients with traumatic brain injury, 8 family caregivers, 16 providers). MAIN MEASURES: We conducted 55 semi-structured interviews with participants and used conventional content analysis to analyze the data.
resultsFindings showed patients, families, and providers recommend three areas for improvement in the transition home from acute hospital care, described in three themes. Theme 1 was "improving patient and family education," with the following sub-themes: (a) TBI-related information and (b) discharge preparation. Theme 2 was "additional provider guidance," with the following sub-themes: (a) communication about patient's recovery timeline and (b) recovery roadmap development. Theme 3 was "increasing systems-level support," with the following sub-themes: (a) scheduling follow-up appointments, (b) using a patient navigator, (c) creating a provider follow-up structure, (d) linking pre-discharge care with post-discharge resources, and (e) addressing social issues.
conclusionsThese findings delineate multiple areas where patients and families need additional support and education during the transition from acute hospital care to home in ways that are currently not being addressed. Findings may be used to improve education and support from providers and health systems given to patients with traumatic brain injury and families and to inform development and testing of transitional care interventions from acute hospital care to home.
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