ArticleJournal of general internal medicine2021
Hospice Care Experiences Among Cancer Patients and Their Caregivers.
Article in Journal of general internal medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 12 citations in OpenAlex.
- TheWestern journal of nursing research · 2025Trial
- User-Generated Google Maps Ratings, State Staffing and Training Regulations, and the Quality of Hospice Care in Assisted Living Communities.Journal of the American Geriatrics Society · 2026Article
- An Informatics Approach to Characterizing Rarely Documented Clinical Information in Electronic Health Records: Spiritual Care as an Exemplar.Applied clinical informatics · 2025Article
- Variation in Palliative Care Program Performance for Patients With Metastatic Cancer.Journal of pain and symptom management · 2025Article
- e-PainSupport: A Digital Pain Management Application for Home Hospice Care.The American journal of hospice & palliative care · 2024Article
- Hospice providers serving assisted living residents: Association of higher volume with lower quality.Journal of the American Geriatrics Society · 2024Article
- Survey on hospice care attitude of family members of advanced cancer patients at different ages.World journal of clinical cases · 2024Article
- Exploring the Holistic Needs of People Living with Cancer in Care Homes: An Integrative Review.Healthcare (Basel, Switzerland) · 2023Review
- Variation in Hospice Experiences by Care Setting for Patients With Dementia.Journal of the American Medical Directors Association · 2022Article
- The Efficacy of Hospice Care for Terminally Ill Emergency Patients During the Coronavirus 2019 Pandemic.Journal of multidisciplinary healthcare · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLittle is known about the current quality of care for hospice cancer patients and how it varies across hospice programs in the USA.
objectiveTo examine hospice care experiences among decedents with a primary cancer diagnosis and their family caregivers, comparing quality across settings of hospice care.
designWe analyzed data from the Consumer Assessment of Healthcare Providers and Systems Hospice Survey (32% response rate). Top-box outcomes (0-100) were calculated overall and by care setting, adjusting for survey mode and patient case mix.
participantsTwo hundred seventeen thousand five hundred ninety-six caregiver respondents whose family member had a primary cancer diagnosis and died in 2017 or 2018 while receiving hospice care from 2,890 hospices nationwide. MAIN MEASURES: Outcomes (0-100 scale) included 8 National Quality Forum-endorsed quality measures, as well as responses to 4 survey questions assessing whether needs were met for specific symptoms (pain, dyspnea, constipation, anxiety/sadness). KEY
resultsQuality measure scores ranged from 74.9 (Getting Hospice Care Training measure) to 89.5 (Treating Family Member with Respect measure). The overall score for Getting Help for Symptoms was 75.1 with item scores within this measure ranging from 60.6 (getting needed help for feelings of anxiety or sadness) to 84.5 (getting needed help for pain). Measure scores varied significantly across settings and differences were large in magnitude, with caregivers of decedents who received care in a nursing home (NH) or assisted living facility (ALF) setting consistently reporting poorer quality of care.
conclusionsImportant opportunities exist to improve hospice care for symptom palliation and providing training for caregivers when their family members are at home or in an ALF setting. Efforts to improve care for cancer patients in the NH and ALF setting are especially needed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.