Evidence map›Paper›PMID 33468449›Full record

ArticleJournal of medical Internet research2021

Using Twitter to Understand the COVID-19 Experiences of People With Dementia: Infodemiology Study.

Juanita-Dawne Bacsu, Megan E O'Connell, Allison Cammer, Mahsa Azizi, Karl Grewal, Lisa Poole, Shoshana Green, Saskia Sivananthan, Raymond J Spiteri

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Juanita-Dawne BacsuDepartment of Psychology, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0002-2819-1617
Megan E O'ConnellDepartment of Psychology, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0001-6159-4322
Allison CammerCollege of Pharmacy and Nutrition, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0003-4965-4112
Mahsa AziziDepartment of Computer Science, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0001-7413-1677
Karl GrewalDepartment of Psychology, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0001-5259-0979
Lisa PooleDementia Advocacy Canada, Calgary, AB, Canada.ORCID 0000-0002-1424-3500
Shoshana GreenDepartment of Psychology, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0002-3968-6754
Saskia SivananthanAlzheimer Society of Canada, Toronto, ON, Canada.ORCID 0000-0002-4347-6346
Raymond J SpiteriDepartment of Computer Science, University of Saskatchewan, Saskatoon, SK, Canada.ORCID 0000-0002-3513-6237

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe COVID-19 pandemic is affecting people with dementia in numerous ways. Nevertheless, there is a paucity of research on the COVID-19 impact on people with dementia and their care partners.

objectiveUsing Twitter, the purpose of this study is to understand the experiences of COVID-19 for people with dementia and their care partners.

methodsWe collected tweets on COVID-19 and dementia using the GetOldTweets application in Python from February 15 to September 7, 2020. Thematic analysis was used to analyze the tweets.

resultsFrom the 5063 tweets analyzed with line-by-line coding, we identified 4 main themes including (1) separation and loss; (2) COVID-19 confusion, despair, and abandonment; (3) stress and exhaustion exacerbation; and (4) unpaid sacrifices by formal care providers.

conclusionsThere is an imminent need for governments to rethink using a one-size-fits-all response to COVID-19 policy and use a collaborative approach to support people with dementia. Collaboration and more evidence-informed research are essential to reducing COVID-19 mortality and improving the quality of life for people with dementia and their care partners.

Indexed as

CaregiversCOVID-19DementiaFamilyHealth PersonnelSocial MediaBereavementData MiningHumansNursing HomesPandemicsQuality of LifeRiskSARS-CoV-2Stress, PsychologicalVisitors to PatientscollaborateCOVID-19dementiadisorderexperiencehealth policyquality of lifesocial mediasupportthemeTwitter

Identifiers

PMID33468449
PMCPMC7861035

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.