Evidence map›Paper›PMID 33464114›Full record

ArticleThe American journal of hospice & palliative care2021

What Do Adults With HIV Want? End-of-Life Care Goals, Values and Beliefs by Gender, Race, Sexual Orientation.

Katherine B Grill, Jichuan Wang, Rachel K Scott, Debra Benator, Lawrence J D'Angelo, Maureen E Lyon, Palliative Care Consortium

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The American journal of hospice & palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
0.4field-weighted citation impact, top 38% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Katherine B GrillCEO & Co-founder, Neolth Inc, Walnut Creek, CA, USA.
Jichuan WangDivision of Biostatistics and Study Methodology, Center for Translational Research at Children's National Hospital, Washington, DC, USA.
Rachel K ScottMedStar Health Research Institute and Washington Hospital Center, Washington, DC, USA.
Debra BenatorGeorge Washington University School of Medicine and Health Sciences, Washington, DC, USA.
Lawrence J D'AngeloGeorge Washington University School of Medicine and Health Sciences, Washington, DC, USA.
Maureen E LyonGeorge Washington University School of Medicine and Health Sciences, Washington, DC, USA.ORCID https://orcid.org/0000-0002-0955-3969
Palliative Care Consortium
Children's National · USGeorge Washington University · USMedStar Washington Hospital Center · US

Funding

Vaccine Response and Immunotherapeutics SWGP30AI094189 · NIAID · JOHNS HOPKINS UNIVERSITY · PI Anna Palmer Durbin · 2012 to 2026
$67.0M
Maternal Morbidity and Mortality: Risk Factors, Early Detection and Personalized InterventionUL1TR001409 · NCATS · GEORGETOWN UNIVERSITY · PI GONDRE-LEWIS, MARJORIE C, MELLMAN, THOMAS A · 2015 to 2024
$37.8M
SWG 2: Cure Research Scientific Working GroupP30AI117970 · NIAID · GEORGE WASHINGTON UNIVERSITY · PI Italo Mocchetti · 2015 to 2026
$29.6M
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCHUL1RR031988 · NCRR · CHILDREN'S RESEARCH INSTITUTE · PI JOSEPH, JILL G · 2010 to 2011
$8.2M
Palliative Care in People Living with AIDS: Integrating into Standard of CareR01NR014052 · NINR · CHILDREN'S RESEARCH INSTITUTE · PI LYON, MAUREEN ELLEN · 2012 to 2016
$2.2M
NCATS NIH HHS UL1 TR001409NCRR NIH HHS UL1 RR031988NIAID NIH HHS P30 AI094189NIAID NIH HHS P30 AI117970NINR NIH HHS R01 NR014052
6 · The paper itself

Abstract

objectiveWe examined factors influencing end-of-life care preferences among persons living with HIV (PLWH).

methods223 PLWH were enrolled from 5 hospital-based clinics in Washington, DC. They completed an end-of-life care survey at baseline of the FACE™-HIV Advance Care Planning clinical trial.

findingsThe average age of patients was 51 years. 56% were male, 66% heterosexual, and 86% African American. Two distinct groups of patients were identified with respect to end-of-life care preferences: (1) a Relational class (75%) who prioritized family and friends, comfort from church services, and comfort from persons at the end-of-life; and (2) a Transactional/Self-Determination class (25%) who prioritized honest answers from their doctors, and advance care plans over relationships. African Americans had 3x the odds of being in the Relational class versus the Transactional/Self-determination class, Odds ratio = 3.30 (95% CI, 1.09, 10.03), p = 0.035. Males were significantly less likely to be in the relational latent class, Odds ratio = 0.38 (CI, 0.15, 0.98), p = 0.045. Compared to non-African-Americans, African-American PLWH rated the following as important: only taking pain medicines when pain is severe,

conclusionIntegrating culturally-sensitive palliative care services as a component of the HIV care continuum may improve health equity and person-centered care.

Indexed as

HIV InfectionsHospice CareTerminal CareAdultFemaleGoalsHumansMaleMiddle AgedSexual BehaviorAfrican Americangenderhealth disparitiesHIV/AIDSpalliative caresexual minority

Identifiers

PMID33464114
PMCPMC8085160
OpenAlexW3122922517

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.