Evidence map›Paper›PMID 33461436›Full record

ArticleJournal of aging & social policy2022

Unrepresented Adults Face Adverse Healthcare Consequences: The Role of Guardians, Public Guardianship Reform, and Alternative Policy Solutions.

Casey C Catlin, Heather L Connors, Pamela B Teaster, Erica Wood, Zachary S Sager, Jennifer Moye

Abstract read
In one paragraph

Article in Journal of aging & social policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Guardianship Before and Following Hospitalization.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2023
    Article
  6. Kinless Older Adults With Dementia: Qualitative Analysis of Data From the Adult Changes in Thought Study.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023
    Article
  7. Article
  8. "I worry about this patient EVERY day": Geriatrics Clinicians' Challenges in Caring for Unrepresented Older Adults.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022
    Article
  9. End-of-Life Care for Persons Under Guardianship.Journal of pain and symptom management · 2021
    Article
  10. Review
  11. The Cost of Medically Unnecessary Days Due to Waiting for Guardianship in a State Acute Hospital System.Inquiry : a journal of medical care organization, provision and financing
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Casey C CatlinBoston VA Research Institute and VA Boston Healthcare System, Boston, MA, USA.
Heather L ConnorsThe Center for Guardianship Excellence, Andover, MA, USA.
Pamela B TeasterVirginia Tech University, Department of Human Development and Faculty Science, Blacksburg, VA, USA.
Erica WoodAmerican Bar Association Commission on Law and Aging, Washington DC, USA.
Zachary S SagerNew England GRECC and Harvard Medical School, Department of Psychiatry, Boston, MA, USA.
Jennifer MoyeNew England GRECC and Harvard Medical School, Department of Psychiatry, Boston, MA, USA.

Funding

Intramural VA VA999999
6 · The paper itself

Abstract

Persons without family or friends to serve as healthcare agents may become "unrepresented" in healthcare, with no one to serve as healthcare agents when decisional support is needed. Surveys of clinicians (N = 81) and attorneys/guardians (N = 23) in Massachusetts reveal that unrepresented adults experience prolonged hospital stays (66%), delays in receiving palliative care (52%), delays in treatment (49%), and other negative consequences. Clinicians say guardianship is most helpful in resolving issues related to care transitions, medical treatment, quality of life, housing, finances, and safety. However, experiences with guardianship are varied, with delays often/always in court appointments (43%) and actions after appointments (24%). Policy solutions include legal reform, education, and alternate models.

Indexed as

Decision MakingLegal GuardiansDelivery of Health CareHumansPolicyQuality of Lifeguardianpublic guardianshipsupportunbefriendedUnrepresented

Identifiers

PMID33461436
PMCPMC8286275

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.