ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
A qualitative study of online support communities for lung cancer survivors on targeted therapies.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- A process evaluation of 'We Can Quit': a community-based smoking cessation intervention targeting women from areas of socio-disadvantage in Ireland.BMC public health · 2022Trial
- Patient and Caregiver Information-seeking in Lung Cancer Treatment: A Real-world Sentiment Analysis of Reddit Communities.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Lung cancer education on social media: use patterns and content preferences from a cross-sectional study.Journal of thoracic disease · 2026Article
- Factors Influencing Continuance Intention for Online Consultations Among Survivors of Cancer: Grounded Theory Study.Journal of medical Internet research · 2026Article
- An Integrative Review to Examine the Care Pathways and Support Available for Individuals Diagnosed with Lung Cancer Who Have Never Smoked.Current oncology (Toronto, Ont.) · 2025Review
- Mapping Characteristics, Applications, and Implementation Challenges of Virtual Communities in Cancer Care: NASSS Framework-Informed Scoping Review.Journal of medical Internet research · 2025Article
- Companionship and Sharing Create Social Connections of an Online Community-Based Intervention for Patients with Cancer Receiving Outpatient Care: Pilot Study.JMIR cancer · 2025Article
- Application of a revised model for coping with advanced cancer to qualitatively explore lung cancer survivors' experiences of ongoing physical effects, novel treatments, uncertainty, and coping.Journal of cancer survivorship : research and practice · 2024Article
- Evaluating the User-Perceived Benefit of a Virtual Lung Cancer Patient Education and Support Community: LVNG With Lung Cancer.Journal of the advanced practitioner in oncology · 2024Article
- Understanding experiences of cancer-related fatigue in patients with lung cancer after their cancer treatment: a qualitative content analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- The labor of talking to stay healthy and socially connected: Communication work during the COVID-19 pandemic.SSM. Qualitative research in health · 2022Article
- A qualitative study of interactions with oncologists among patients with advanced lung cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Psychosocial Aspects of Living Long Term with Advanced Cancer and Ongoing Systemic Treatment: A Scoping Review.Cancers · 2022Article
- Pregnant women's coping strategies, participation roles and social support in the online community during the COVID-19.Information processing & management · 2022Article
- Key Determinants of Health-Related Quality of Life Among Advanced Lung Cancer Patients: A Qualitative Study in Belgium and Italy.Frontiers in pharmacology · 2021Article
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Authors and funding
2 authors.
Funding
Abstract
backgroundDue to recent treatment advances, people who have non-small cell lung cancer with oncogenic alterations are an important new group of cancer survivors. Little is known about lung cancer online support communities. This research was guided by two primary questions: (1) How do these lung cancer survivors engage in online support communities? and (2) What are the psychological, social, and physical impacts of such engagement?
methodsQualitative in-depth interviews were conducted with patients with advanced lung cancer (N = 40) to learn about their experiences with the illness. We used qualitative thematic analysis, inductive and deductive, as outlined by Carspecken. We adapted the framework for studying online communities developed by Zhang and colleagues to examine engagement with and impacts of involvement in online lung cancer support communities.
resultsParticipants described engaging in the online community through (1) initializing communication through asking questions or sharing resources, (2) responding to others comments or inquiries, or (3) simply observing/reading others posts. Participation had physical, psychological, or social impacts, with benefits (e.g., empowerment) and risks (e.g., feelings of jealousy or misinformation) in each domain. Participants used various strategies to mitigate negative impacts, such as distancing oneself as needed.
conclusionsOnline lung cancer support communities provide support, camaraderie, and specialized health information. However, there are also risks of online engagement, such as social comparison or accessing misinformation. Understanding the utility of online support communities for lung cancer survivors on targeted therapies and further addressing their risks are urgent tasks, especially in the post-COVID era.
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