ArticleJournal of patient experience2020
Grief and Loss Associated With Stroke Recovery: A Qualitative Study of Stroke Survivors and Their Spousal Caregivers.
Article in Journal of patient experience, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- Factors associated with grief in informal carers of people living with Motor Neuron Disease: A mixed methods systematic review.Death studies · 2024Pooled it
- 'Some of Them Were Created by People Who Have Never Had a Stroke': Understanding Desired Physical and Occupational Therapy Research Study Features for People With Chronic Stroke.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patient perspective and research prioritization in rehabilitation after stroke - results from an online survey in Germany.BMC health services research · 2025Article
- Study on the mechanism of family resilience on loneliness in older adults with stroke.Frontiers in psychology · 2025Article
- Silver Linings: A principle-based concept analysis examining the emergence of positive changes that accompany adversity.International journal of nursing studies advances · 2024Review
- Exploring different stroke populations' information needs: a cross-sectional study in England.Archives of public health = Archives belges de sante publique · 2024Article
- Comparison of Upper Extremity Function and Daily Use in Individuals with and without Post Stroke Depression.Neurorehabilitation and neural repair · 2024Article
- Nurse-led telerehabilitation intervention to improve stroke efficacy: Protocol for a pilot randomized feasibility trial.PloS one · 2023Article
- Barriers to Self-Care Planning for Family Caregivers of Patients with Severe Mental Illness.Journal of patient experience · 2022Article
- Understanding the Professional Care Experience of Patients with Stroke: A Qualitative Study Using In-Depth Interviews.International journal of integrated careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Despite a focus on physical and cognitive outcomes, stroke survivors are also impacted by emotional and mental health challenges. Additionally, their caregivers may experience decreased well-being due to increased burden and role adjustment. A small body of literature characterizes this experience as a form of grief and loss. This study seeks to explore experiences of grief and loss reported by stroke survivors and caregivers, using Holbrook's 4-stage bereavement model. This cross-sectional, qualitative study was conducted among adult stroke survivors (n = 9) and their spousal caregivers (n = 5). Focus groups on experiences of recent hospitalizations and transitions home were transcribed, coded, and thematic analysis was conducted, identifying a major theme of loss. Data were reanalyzed guided by Holbrook's model. Common themes were losses and changes experienced by patients/caregivers, disbelief, and lack of understanding. Subthemes of denial and confusion were present. Less prevalent themes were loss of existing support systems and silver lining. Stroke survivors and caregivers experienced a range of negative emotions, impacting behaviors, self-perception, roles, and social support. Awareness of these issues can improve practice with those affected by stroke.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.