Evidence map›Paper›PMID 33457527›Full record

ArticleJournal of patient experience2020

People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers.

M Patrice Lindsay, Natalie Gierman, Jocelyn E Harris, Gavin Arthur, Moira E Teed, Anita Mountain, Gordon Gubitz, Eric E Smith, Dar Dowlatshahi, Andrea de Jong and 1 more

Abstract read
In one paragraph

Article in Journal of patient experience, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Guideline
  2. Pooled it
  3. Guideline
  4. Review
  5. Article
  6. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2023
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

M Patrice LindsayHeart and Stroke Foundation of Canada, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0002-2584-8580
Natalie GiermanHeart and Stroke Foundation of Canada, Toronto, Ontario, Canada.
Jocelyn E HarrisSchool of Rehabilitation Science, McMaster University, Institute for Applied Health Sciences, Hamilton, Ontario, Canada.
Gavin ArthurHeart and Stroke Foundation of Canada, Toronto, Ontario, Canada.
Moira E TeedHeart and Stroke Foundation of Canada, Toronto, Ontario, Canada.
Anita MountainDivision of Physical Rehabilitation Medicine, Department of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada.
Gordon GubitzDivision of Neurology, Department of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada.
Eric E SmithDepartment of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada.
Dar DowlatshahiDivision of Neurology, Department of Medicine, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Andrea de JongHeart and Stroke Foundation of Canada, Toronto, Ontario, Canada.
Leigh C P BotlyHeart and Stroke Foundation of Canada, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0002-5979-3899

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, and beneficial to stroke care. This project successfully demonstrated that values, experiences, and recommendations of PWLE can be effectively incorporated into guideline content and is applicable to all guideline development processes.

Indexed as

clinical practice guidelinespatient engagementpeople with lived experienceperceptions of careperson-centered carerehabilitationstroketransitions of care

Identifiers

PMID33457527
PMCPMC7786657

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.