ArticleEuropean journal of human genetics : EJHG2021
The ethics of genomic medicine: redefining values and norms in the UK and France.
Article in European journal of human genetics : EJHG, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- When screening and diagnosis converge: participant interpretations of additional findings in the 100,000 genomes project.European journal of human genetics : EJHG · 2026Article
- Caring for Rare Genetic Disease: A Vision for the Future.Journal of genetic counseling · 2026Article
- Strengthening legal safeguards against genetic discrimination: review and recommendations for Malaysia.Journal of community genetics · 2026Review
- The Arrival of Exome Sequencing in French Prenatal Diagnosis: An Exploratory Qualitative Study Among Professionals in Prenatal Diagnosis Centers: Prenatome-SHS.Prenatal diagnosis · 2026Article
- Genomic Medicine and Individual Autonomy: Reflections on Knowledge Societies and Governmentality.International journal of environmental research and public health · 2026Article
- Criminalizing genomic discrimination: protecting human dignity under UAE and French law.Frontiers in medicine · 2026Article
- The value of large-scale programmes in human genomics.European journal of human genetics : EJHG · 2025Article
- Population health management fit lifecycles in analytics.Frontiers in artificial intelligence · 2025Article
- Ethical and social implications of public-private partnerships in the context of genomic/big health data collection.European journal of human genetics : EJHG · 2024Article
- Informed consent for whole genome sequencing in mainstream clinics: logistical constraints and possible solutions.European journal of human genetics : EJHG · 2024Article
- Towards the Future of Public Health: Roadmapping Trends and Scenarios in the Post-COVID Healthcare Era.Healthcare (Basel, Switzerland) · 2023Article
- The implementation of large-scale genomic screening or diagnostic programmes: A rapid evidence review.European journal of human genetics : EJHG · 2023Review
- Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.European journal of human genetics : EJHG · 2023Article
- Genetic counselling and testing for neurodegenerative disorders using a proposed standard of practice for ALS/MND: diagnostic testing comes first.European journal of human genetics : EJHG · 2022Article
- Ethics as Lived Practice. Anticipatory Capacity and Ethical Decision-Making in Forensic Genetics.Genes · 2021Article
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3 authors.
Funding
Abstract
This paper presents a joint position of the UK-France Genomics and Ethics Network (UK-FR GENE), which has been set up to reflect on the ethical and social issues arising from the integration of genomics into routine clinical care in the UK and France. In 2018, the two countries announced enhanced cooperation between their national strategies, Genomics England and Plan France Médecine Génomique 2025, which offers a unique opportunity to study the impact of genomic medicine and relevant policies in different national contexts. The paper provides first insights into the two national strategies and the norms, values and principles at stake in each country. It discusses the impact of genomic medicine on established relationships and existing regulations, and examines its effects on solidarity and trust in public healthcare systems. Finally, it uses the social contract as an analytical lens to explore and redefine the balance between individual rights and collective duties in the context of genomic medicine. This paper leads to three key observations: (1) despite each country's strategy being at a different stage of implementation, the two countries face similar ethical issues; (2) each country tries to solve these issues by (re-)defining individual rights and collective duties in its own way; (3) the social contract presents a useful tool to analyse the ways the UK and France address the ethical challenges raised by genomics. This overview lays the groundwork for future in-depth comparison, and drive collaborative research, between the UK and France.
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Registered trials
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