ArticleSeizure2021
The perceived impact of COVID-19 and associated restrictions on young people with epilepsy in the UK: Young people and caregiver survey.
Article in Seizure, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Pooled it
- Seizure Control in Patients with Epilepsy during the COVID-19 Pandemic: A Systematic Review and Meta-analysis.Internal medicine (Tokyo, Japan) · 2022Pooled it
- Prevalence of depression, anxiety, and psychological distress in patients with epilepsy during COVID-19: A systematic review.Epilepsy & behavior : E&B · 2021Pooled it
- The impact of COVID-19 on people with epilepsy: Global results from the coronavirus and epilepsy study.Epilepsia open · 2024Article
- Bibliometric analysis of research in epilepsy and comorbid depression from 2014 to 2023.World journal of psychiatry · 2024Article
- The Impact of COVID-19 on Children and Adolescents with Chronic Illness.Advances in experimental medicine and biology · 2024Review
- Children with medical complexities: their distinct vulnerability in health systems' Covid-19 response and their claims of justice in the recovery phase.Medicine, health care, and philosophy · 2023Article
- A multi-country survey on access to healthcare and treatment services among individuals with critical medical care needs during the first wave of the pandemic.BMC public health · 2023Article
- Healthcare resource allocation decisions and non-emergency treatments in the aftermath of Covid-19 pandemic. How should children with chronic illness feature in prioritisation processes?Wellcome open research · 2023Article
- COVID-19 and parents of children with epilepsy: Experiences and positive changes.Frontiers in public health · 2023Article
- Changes in sleep quality of children with epilepsy and anxiety of their caregivers after COVID-19 infection: a case-series report.Frontiers in pediatrics · 2023Article
- Adolescents with Neuropsychiatric Disorders during the COVID-19 Pandemic: Focus on Emotional Well-Being and Parental Stress.Healthcare (Basel, Switzerland) · 2022Article
- Levels of Depression and Anxiety Among Informal Caregivers During the COVID-19 Pandemic: A Study Based on the Canadian Longitudinal Study on Aging.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
- Seizure control during the COVID-19 pandemic: Correlating Responsive Neurostimulation System data with patient reports.Clinical neurophysiology : official journal of the International Federation of Clinical Neurophysiology · 2022Article
- Impact of COVID-19 Pandemic on Children and Adolescents with Neuropsychiatric Disorders: Emotional/Behavioral Symptoms and Parental Stress.International journal of environmental research and public health · 2022Article
- It's made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness.PloS one · 2022Article
- Resilience of adolescents and teenagers with self-limited and genetic-generalized epilepsy during the COVID-19 pandemic.Epilepsy & behavior reports · 2022Article
- Prioritizing Seizure Safety and SUDEP Counseling in People With Epilepsy and Their Caregivers During the COVID-19 Pandemic.Pediatric neurology · 2021Article
- Impact of the COVID-19 pandemic on people with epilepsy: Findings from the Brazilian arm of the COV-E study.Epilepsy & behavior : E&B · 2021Article
- Psychological impact of the COVID-19 pandemic for patients with epilepsy: A systematic review and meta-analysis.Epilepsy & behavior : E&B · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo garner the views of young people with epilepsy and caregivers regarding the impact of COVID-19 and subsequent restrictions in the UK. MEHODS: An online survey was used to explore the views of young people with epilepsy (n = 71) and caregivers (n = 130) in June 2020. It included questions on the impact of the pandemic and associated restrictions on the child's epilepsy and on child and parental wellbeing.
resultsOne in three young people and 29 % of caregivers reported that the young person's seizures had increased during the pandemic (only 10 % of young people and 8% of caregivers reported a decrease). Half of young people reported that they were more reluctant to go to hospital. Thirty-one percent of young people and 20 % of parents reported difficulties getting epilepsy medication whilst a significant minority of young people (18 %) and caregivers (25 %) reported that the young person had investigations/assessments cancelled by their hospital. The majority of young people reported their sleep (72 %), mood (64 %) and levels of physical activity (53 %) had deteriorated. Caregivers experienced increases in stress (55 %) and anxiety (52 %). Epilepsy nurses were seen as the most helpful support
conclusionsResults indicate that the pandemic and associated restrictions have had a negative impact on young people with epilepsy. Perceived increases in seizures, reluctance to go to hospital and cancelled investigations are likely to impact on epilepsy management. The wider psychosocial impact is also likely to be significant with increases in child and caregiver mental health problems in an already vulnerable group.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.