ArticleDisability and health journal2021
Development of a new pregnancy informational and decisional needs survey for women with physical disabilities.
Article in Disability and health journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
5 citing papers in PubMed.
- Pregnancy Decision-Making Among Women With Physical Disabilities: Cross-Sectional Survey Study.BJOG : an international journal of obstetrics and gynaecology · 2026Article
- Arthrogryposis Multiplex Congenita (AMC) and counselling before and during pregnancy: a questionnaire study.Orphanet journal of rare diseases · 2025Article
- Development and pilot test of a pregnancy decision making tool for women with physical disabilities.Health services research · 2023Article
- Article
- Pregnancy and physical disability: A scoping review.Women's health (London, England)Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
backgroundWhile the literature on pregnancy and disability is growing, generating important knowledge of barriers to care and health risks, there is limited literature on pregnancy decision-making and informational needs. Such knowledge is critical for the development of interventions to mitigate the challenges women with disabilities and health care providers face in making this important decision.
objective/Hypothesis: Develop a survey of pregnancy decisional and informational needs of women with physical disabilities.
methodsWe developed a conceptual framework that guided item writing, defined the characteristics of the target population, engaged stakeholders with disabilities to collaborate with investigators, and tested the interpretability and relevance of items, and preferred mode of responding (online vs. telephone). A total of 123 women participated in cognitive interviews (N = 13), mode testing (N = 10), or survey data collection (N = 114).
resultsInstructions, three screening questions, and 156 items were tested in one round of 17 cognitive interviews; 25 items were deleted, 94 were revised, and 37 items were retained without changes. The final version of the survey included six sub-sections: the experience of making a decision; information about pregnancy and disability; things affecting a decision; knowing what is important; support for making a decision; and working with health care providers.
conclusionsThe overall performance of the survey supported its content validity and utility as a useful way to gather information about the pregnancy decision-making experience and informational needs of women with physical disabilities.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.