ArticleThe American journal of bioethics : AJOB2021
Extending Research Protections to Tribal Communities.
Article in The American journal of bioethics : AJOB, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Preferences for Social Media Vaccination Messaging.JAMA network open · 2026Article
- A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction.Frontiers in genetics · 2026Article
- Care-Seeking Action after Helicobacter pylori Testing among a High-Risk Indigenous Population: A Cross-Sectional Study Follow-up.The American journal of tropical medicine and hygiene · 2025Article
- Why Revise When We Should Reconcile?The American journal of bioethics : AJOB · 2025Article
- Diné traditional medicine use and wellbeing among navajo adults during the COVID-19 pandemic: A cross-sectional study.PloS one · 2025Article
- Community-engaged artificial intelligence: an upstream, participatory design, development, testing, validation, use and monitoring framework for artificial intelligence and machine learning models in the Alaska Tribal Health System.Frontiers in artificial intelligence · 2025Article
- Healthcare access, attitudes and behaviours among Navajo adults during the COVID-19 pandemic: a cross-sectional study.BMJ public health · 2024Article
- Advancing genomics to improve health equity.Nature genetics · 2024Review
- "'Keep the Fire Burning': Applications and Culturally Congruent Research Strategies for Research on Sexual and Reproductive Health With Indigenous Women".Journal of participatory research methods · 2024Article
- The CPT1A Arctic variant: perspectives of community members and providers in two Alaska tribal health settings.Journal of community genetics · 2023Article
- Indigenous Peoples and research: self-determination in research governance.Frontiers in research metrics and analytics · 2023Article
- Community engagement strategies to promote recruitment and participation in clinical research among rural communities: A narrative review.Journal of clinical and translational science · 2023Review
- Five recommendations for using large-scale publicly available data to advance health among American Indian peoples: the Adolescent Brain and Cognitive Development (ABCD) StudyNeuropsychopharmacology : official publication of the American College of Neuropsychopharmacology · 2023Review
- Extending the CARE Principles from tribal research policies to benefit sharing in genomic research.Frontiers in genetics · 2022Article
- Solidarity in the Absence of Sovereignty: Expanding Group Protections in New Research Contexts.The American journal of bioethics : AJOB · 2021Article
- For the Good of the Community: Considering the Impact of Evidence-Based Treatment Adaptation on Tribal Communities.The Behavior therapist · 2021Article
- Navigating University Openness in Research Policy Inconsistent with Indigenous Data Sovereignty: A Case Analysis.Ethics & human researchArticle
- Article
- COVID-19 Messaging on Social Media for American Indian and Alaska Native Communities: Thematic Analysis of Audience Reach and Web Behavior.JMIR infodemiologyArticle
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Authors and funding
5 authors.
Funding
Abstract
The history of research in American Indian/Alaska Native (AI/AN) communities has been marked by unethical practices, resulting in mistrust and reluctance to participate in research. Harms are not limited to individual persons-tribal communities experience harmful misrepresentation and generalizations disrespectful of AI/AN groups' heritage, cultures, and beliefs. The Belmont Report's research ethics principles are applied primarily to protect individual research participants. The principles of sovereignty and solidarity are argued to be important concepts in extending Belmont's research protections to tribal communities. Sovereignty, an expression of respect for autonomy at a group level, is the basis for tribal self-determination. The principle of solidarity provides an ethical underpinning for tribes' obligations to protect community interests and culture. Extension of Belmont through these principles should serve to minimize harms to AI/AN groups in research.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.