ArticleInternational journal of environmental research and public health2021
Family Variables and Quality of Life in Children with Down Syndrome: A Scoping Review.
Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Prenatal Screening for Common Aneuploidy in Southeast Asian Countries: A Systematic Review of Challenges and Opportunities.Prenatal diagnosis · 2026Pooled it
- Pooled it
- The psychological impact of pediatric movement disorders on families: brief report.Frontiers in pediatrics · 2026Review
- A scoping review of the perinatal healthcare experiences of Indigenous childbearing people.Reproductive health · 2025Article
- Parental Perspectives on Oral Health and Access to Care in Children with Down Syndrome: A Narrative Review.Children (Basel, Switzerland) · 2025Review
- Walking capacity and its association with quality of life among children with down syndrome in Saudi Arabia.BMC pediatrics · 2024Article
- Family Self-Support in Managing Down Syndrome Children: A Qualitative Study.TheScientificWorldJournal · 2024Article
- Review
- Health-related quality of life and family functioning of primary caregivers of children with down syndrome.Frontiers in psychiatry · 2023Article
- Parental perspectives on the quality of life of children with Down syndrome.Frontiers in psychiatry · 2022Article
- Effect of the Sharrard procedure on hip instability in children with Down syndrome: a retrospective study.Journal of children's orthopaedics · 2021Article
- The Brief COPE: Measurement Invariance and Psychometric Properties among Community and At-Risk Portuguese Parents.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The purpose of this scoping review was to identify the family and child quality of life variables that have been studied in relation to one another in children with Down syndrome, the frequency with which different relationships have been studied, and the extent to which family variables were the focus of the research aims. A literature search was conducted to find studies published between January 2007 and June 2018. The initial search yielded 2314 studies; of these, 43 were selected for a final review. Researchers most often addressed family resources and family problem-solving and coping concerning child personal development and physical well-being. Little attention to child emotional well-being was observed, with none considering family appraisal of child emotional well-being. The relationship between family variables and child QoL rarely was the primary focus of the study. Methodologically, most reviewed studies used cross-sectional designs, were conducted in North America and based on maternal report. From future research considering the issues found in this review, healthcare providers can obtain an in-depth understanding of relationships between children and family variables.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.