ArticleThe journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG2021
Perceived Versus Demonstrated Understanding of the Complex Medications of Medically Complex Children.
Article in The journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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Who cites it
16 citing papers in PubMed, 23 citations in OpenAlex.
- Medication Management and Caregiving Stress or Benefit in Children with Medical Complexity.Journal of pediatrics. Clinical practice · 2026Article
- Evolution of Clinical Fragility and Medication Burden in Children with Medical Complexity: A Longitudinal Cohort Study.Children (Basel, Switzerland) · 2026Article
- Characterization of Treatment Utilization in a Metabolic Genetics Clinic.The journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG · 2025Article
- Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2024Article
- Medication Management Through Collaborative Practice for Children With Medical Complexity: A Prospective Case Series.The journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG · 2024Article
- An mHealth Design to Promote Medication Safety in Children with Medical Complexity.Applied clinical informatics · 2024Article
- A coordinated approach for managing polypharmacy among children with medical complexity: rationale and design of the Pediatric Medication Therapy Management (pMTM) randomized controlled trial.BMC health services research · 2023Article
- Making Polypharmacy Safer for Children with Medical Complexity.The Journal of pediatrics · 2023Article
- Anticholinergic Medications and Parent-Reported Anticholinergic Symptoms in Neurologically Impaired Children.Journal of pain and symptom management · 2023Article
- Creating Data Standards to Support the Electronic Transmission of Compounded Nonsterile Preparations (CNSPs): Perspectives of a United States Pharmacopeia Expert Panel.Children (Basel, Switzerland) · 2022Article
- Caregiver perceptions of in-home COVID-19 testing for children with medical complexity: a qualitative study.BMC pediatrics · 2022Article
- Complexity of Medication Regimens for Children With Neurological Impairment.JAMA network open · 2021Article
- Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data.JAMA network open · 2021Article
- Virtual medication tours with a pharmacist as part of a cystic fibrosis telehealth visit.Journal of the American Pharmacists Association : JAPhAArticle
- Identifying opportunities for pediatric medication therapy management in children with medical complexity.Journal of the American Pharmacists Association : JAPhAArticle
- Challenges of managing pediatric polypharmacy in a pediatric complex care program: A qualitative pilot study.Journal of the American Pharmacists Association : JAPhAArticle
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesParents and caregivers of children with medical complexity (CMC) manage complex medication regimens (CMRs) at home. Parental understanding of CMRs is critical to safe medication administration. Regarding CMR administration, we 1) described the population of CMC receiving CMRs; 2) assessed parental perceived confidence and understanding; and 3) evaluated parental demonstrated understanding.
methodsCross-sectional clinic-based assessment of knowledge and understanding of CMC using CMRs who received primary care in a large pediatric complex care clinic. CMRs were identified by the receipt of ≥1 of the following: 1) ≥10 concurrent medications; 2) ≥1 high-risk medication; or 3) ≥1 extemporaneously compounded medication. Parents reported their perceived confidence and understanding of CMRs, and then demonstrated understanding through 3 medication-related tasks.
resultsOf 156 CMCs, most were <10 years of age (63.5%), white (75%), had neurologic impairment (76.9%), and used a median of 8 medications (IQR, 5-10). Parents were female (76.9%) with a mean age of 38.8 ± 11.5 years, white (69.9%), spoke English (94.2%), and had some college education (82.1%). On 11 confidence and understanding statements, most parents reported a high perceived level of understanding and confidence, with combined agreement or strong agreement ranging between 81.2% and 98.7%. Only 73.1% correctly identified medications taken for specified conditions, 40.4% reported complete dosing parameters, and 54.8% correctly measured 2 different medication doses. Significant differences existed between parental perceived understanding versus the 3 demonstrated tasks (all p < 0.05).
conclusionsSubstantial opportunities exist to improve medication safety and efficacy in the outpatient, in-home setting including improved medication-specific education and medication-related supports.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.