Evidence map›Paper›PMID 33423532›Full record

ReviewThe American journal of hospice & palliative care2021

Sociodemographic Disparities in Access to Hospice and Palliative Care: An Integrative Review.

Katie E Nelson, Rebecca Wright, Anna Peeler, Teresa Brockie, Patricia M Davidson

Abstract readReview
In one paragraph

Review in The American journal of hospice & palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
52citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

52 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
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  6. A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026
    Article
  7. Article
  8. Advancing rural cancer control: A portfolio analysis of research funded by the National Cancer Institute, 2016-2024.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2026
    Article
  9. Patterns and predictors of palliative care use in acute heart failure hospitalizations.American heart journal plus : cardiology research and practice · 2026
    Article
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  12. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Katie E Nelson15851Johns Hopkins University School of Nursing, Baltimore, MD, USA.ORCID https://orcid.org/0000-0002-0264-7292
Rebecca Wright15851Johns Hopkins University School of Nursing, Baltimore, MD, USA.
Anna Peeler15851Johns Hopkins University School of Nursing, Baltimore, MD, USA.
Teresa Brockie15851Johns Hopkins University School of Nursing, Baltimore, MD, USA.
Patricia M Davidson15851Johns Hopkins University School of Nursing, Baltimore, MD, USA.

Funding

Interdisciplinary Training in Cardiovascular Health ResearchT32NR012704 · NINR · JOHNS HOPKINS UNIVERSITY · PI ALLEN, JERILYN K · 2011 to 2020
$1.8M
Exploring End-of-Life Care: Access and Perspectives among the A'aniniiin and Nakoda TribesF31NR020145 · NINR · JOHNS HOPKINS UNIVERSITY · PI NELSON, KATIE ELIZABETH · 2021 to 2023
$75k
NINR NIH HHS F31 NR020145NINR NIH HHS T32 NR012704
6 · The paper itself

Abstract

backgroundThere is growing evidence of disparities in access to hospice and palliative care services to varying degrees by sociodemographic groups. Underlying factors contributing to access issues have received little systematic attention.

objectiveTo synthesize current literature on disparities in access to hospice and palliative care, highlight the range of sociodemographic groups affected by these inequities, characterize the domains of access addressed, and outline implications for research, policy, and clinical practice.

designAn integrative review comprised a systematic search of PubMed, Embase, and CINAHL databases, which was conducted from inception to March 2020 for studies outlining disparities in hospice and palliative care access in the United States. Data were analyzed using critical synthesis within the context of a health care accessibility conceptual framework. Included studies were appraised on methodological quality and quality of reporting.

resultsOf the articles included, 80% employed non-experimental study designs. Study measures varied, but 70% of studies described differences in outcomes by race, ethnicity, or socioeconomic status. Others revealed disparate access based on variables such as age, gender, and geographic location. Overall synthesis highlighted evidence of disparities spanning 5 domains of access: Approachability, Acceptability, Availability, Affordability, and Appropriateness; 60% of studies primarily emphasized Acceptability, Affordability, and Appropriateness.

conclusionsThis integrative review highlights the need to consider various stakeholder perspectives and attitudes at the individual, provider, and system levels going forward, to target and address access issues spanning all domains.

Indexed as

Hospice and Palliative Care NursingHospice CareHospicesDatabases, FactualHealth FacilitiesHumansPalliative Carehealthcare disparitieshealth services accessibilityhospicespalliative carereview

Identifiers

PMID33423532
PMCPMC8514114

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.