ArticleBMC palliative care2021
A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer.
Article in BMC palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it, 51 citations in OpenAlex.
- Family Experiences, Needs, and Perceptions in Home-Based Hospice Care for Patients With Terminal Cancer: Meta-Synthesis and Systematic Review.JMIR cancer · 2025Pooled it
- Patient and family perspectives on rural palliative care models: A systematic review and meta-synthesis.Palliative medicine · 2024Pooled it
- Bereaved informal caregivers' experiences with a Canadian home hospice program: a qualitative study.BMC palliative care · 2026Article
- Kept at a Distance: A Qualitative Study of Bereaved Individuals' Experiences of How Death Was Addressed When Their Partner Died at Home.Qualitative health research · 2026Article
- Facing death in care: Nurses' lived experiences in the care of bedridden patients.Palliative & supportive care · 2026Article
- Preparing for home death in rural areas - the experience of family caregivers providing palliative cancer care.International journal of circumpolar health · 2025Article
- Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- End-of-life care at home: Dignity of family caregivers.Nursing ethics · 2025Article
- " I can't do it anymore": a qualitative study on the emergence of crisis in outpatient palliative care-the perspective of family caregivers.BMC palliative care · 2025Article
- Caregiver experience of specialist hospice palliative care in rural communities: A qualitative study exploring rural culture, hospice nurse characteristics, roles, and carer strategic ideas.Palliative care and social practice · 2025Article
- Ambivalent and heavy burdened wanderers on a road less travelled: a meta-ethnography on end-of-life care experiences among family caregivers in rural areas.BMC health services research · 2024Article
- Preparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- District nurses experiences in providing terminal care in rural and more urban districts. A qualitative study from the Faroe Islands.Scandinavian journal of primary health care · 2024Article
- Normality and compassionate care: experiences from advanced cancer patients in their last time at home.BMC primary care · 2024Article
- Standardizing Integrated Oncology and Palliative Care Across Service Levels: Challenges in Demonstrating Effects in a Prospective Controlled Intervention Trial.Oncology and therapy · 2024Article
- 'Only to reconcile with it'. The coping experience amongst middle-aged and older cancer survivors: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- What Keeps the Family Caregiver Motivated to Care for Their Dying Relative at Home? A Brief Report of a Qualitative Interview Study.Palliative medicine reports · 2024Article
- Dying at "home" - a qualitative study of end-of-life care in rural Northern Norway from the perspective of health care professionals.BMC health services research · 2023Article
- Psychosocial experiences of caring by family caregivers of patients living with prostate cancer in a teaching hospital: A descriptive phenomenological study.Nursing open · 2023Article
- Patient-Caregiver Dyads' Prognostic Information Preferences and Perceptions in Advanced Cancer.Journal of pain and symptom management · 2023Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFor cancer patients and their family, an important factor that determines the choice to die at home is the caregivers' feeling of security when caring for the patient at home. Support to caregivers from healthcare professionals is important for the feeling of security. In rural areas, long distances and variable infrastructure may influence on access to healthcare services. This study explored factors that determined the security of caregivers of patients with advanced cancer who cared for the patients at home at the end of life in the rural region of Sogn og Fjordane in Norway, and what factors that facilitated home death.
methodsA qualitative study using semi-structured in-depth interviews with bereaved with experience from caring for cancer patients at home at the end of life was performed. Meaning units were extracted from the transcribed interviews and divided into categories and subcategories using Kvale and Brinkmann's qualitative method for analysis.
resultsTen bereaved caregivers from nine families where recruited. Five had lived together with the deceased. Three main categories of factors contributing to security emerged from the analysis: "Personal factors", "Healthcare professionals" and "Organization" of healthcare. Healthcare professionals and the organization of healthcare services contributed most to the feeling of security.
conclusionGood competence in palliative care among healthcare professionals caring for patients with advanced cancer at home and well- organized palliative care services with defined responsibilities provided security to caregivers caring for advanced cancer patients at home in Sogn og Fjordane.
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