ArticleEpidemiology and psychiatric sciences2021
Mental health and caregiving experiences of family carers supporting people with psychosis.
Article in Epidemiology and psychiatric sciences, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 49 citations in OpenAlex.
- The qualitative accounts of black informal carers of people with psychosis and their experiences accessing mental health services: a systematic review.Archives of public health = Archives belges de sante publique · 2025Pooled it
- Prevalence of violence by people living with severe mental illness against their relatives and its associated impacts: A systematic review.Acta psychiatrica Scandinavica · 2023Pooled it
- Trial
- Examining the Impact of Assistive Technology on Psychological Health, Family Education, and Curriculum Research in Japan: Insights from Artificial Intelligence.Journal of autism and developmental disorders · 2024Trial
- Effect of digital psychoeducation and peer support on the mental health of family carers supporting individuals with psychosis in England (COPe-support): a randomised clinical trial.The Lancet. Digital health · 2022Trial
- Perceived Acceptability and Experiences of a Digital Psychoeducation and Peer Support Intervention (COPe-support): Interview Study With Carers Supporting Individuals With Psychosis.Journal of medical Internet research · 2022Trial
- Co-Production With Mental Health Family Carers: The Value, Outcomes and Benefits for Family Carers and Academic Researchers.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- How Can We Better Assist Caregivers With Understanding and Addressing the Cognitive Health Needs of People With Psychotic Disorders?Schizophrenia bulletin · 2026Review
- Expressed emotions and caregiving appraisals among relatives of patients with psychotic disorders: a cross-sectional study.BMC psychiatry · 2026Article
- The Cumulative Risk of Having a Family Member With a Diagnosed Mental Disorder: A Nationwide Study of Mental Disorders in Family Networks.Acta psychiatrica Scandinavica · 2026Article
- Family in the experience of multiprofessional team care for elderly residents of a Therapeutic Residential Service.Revista da Escola de Enfermagem da U S P · 2026Article
- Experiences, needs and priorities of family caregivers of people with severe mental health conditions in low- and middle-income countries: A systematic review of qualitative studies.Global mental health (Cambridge, England) · 2026Review
- Mindfulness-based intervention in caregiver psychological well-being burden and coping.Bioinformation · 2026Article
- Supporting family caregivers: Variations in caregiving among families managing chronic health conditions.The American psychologist · 2025Article
- Carers' Perceptions of Seclusion and Restraints in Mental Healthcare: An Integrative Literature Review.International journal of mental health nursing · 2025Review
- Is tobacco dependence a moderator of psychiatric symptom severity and caregiver abuse in rural families of patients with severe mental disorders?Psychological medicine · 2025Article
- Support for Recovery in Mental Health: A Delphi Study From the Family's Perspective.International journal of mental health nursing · 2025Article
- Caregivers' Experience of Supporting Deaf Adults with Mental Health Disorders in Ghana.International journal of environmental research and public health · 2025Article
- Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey.BJPsych open · 2025Article
- Healthcare needs and expectations of family members caring for mental healthcare users in South Africa.Curationis · 2024Article
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 1 country.
Funding
Abstract
aimsFamily carers supporting an individual with psychosis often experience poorer mental health, however, little is known about specific risk factors among these carers. We investigated the associations between demographic, caregiving characteristics and mental health outcomes in family carers supporting an individual with psychosis and compared carers' outcomes with general population norms.
methodsWe analysed baseline data from the COPe-support randomised controlled trial of online psychoeducation and peer support for adult carers supporting an individual with psychosis between 2018 and 2020. We collected carers' demographic and health outcome data, including wellbeing using Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS as primary outcome), quality of life using EQ-5D-5L and caregiving experience assessed with Experience of Caregiving Inventory. We tested associations between carers' demographic and caregiving characteristics for each outcome in turn and meta-analysed carers' WEMWBS and EQ-5D-5L with Health Survey England (HSE) general population data from 2016 and 2017, respectively.
resultsThe 407 carers of people with psychosis had a mean WEMWBS score of 42.2 (s.d. 9.21) and their overall weighted pooled WEMWBS score was 7.3 (95% confidence interval (CI) -8.6 to -6.0, p < 0.01) lower than the HSE general population sample, indicating carers have poorer mental wellbeing by more than double the minimum clinically important difference of 3 points on WEMWBS. Among all caring relationships, partners had poorer wellbeing compared to parents with lower WEMWBS score (-6.8, -16.9 to 3.3, p = 0.03). Single carers had significantly poorer wellbeing (-3.6, -5.6 to -1.5, p < 0.01) and a more negative caregiving experience than those who were cohabiting. Spending more than 35 h per week caregiving increased carers' negative experience significantly (p = 0.01).
conclusionCarers of people with psychosis have poorer mental health than non-carers. Partners, lone carers and those spending more than 35 h per week on caring were found to be most at risk of poor mental health. Based on the results, we advocate that the details of carers for individuals with psychosis should be added to the existing carers or severe mental illness registers at all general practitioner surgeries and for their wellbeing screened routinely. Future large-scale prospective studies are needed to develop a predictive model to determine risk factors, hence to aid early identification of carers' support needs. Such understandings are also useful to inform tailored intervention development.
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