Evidence map›Paper›PMID 33415288›Full record

ArticleSAGE open nursing

Transition Experiences of Caregivers of Older Adults With Dementia and Multiple Chronic Conditions: An Interpretive Description Study.

Annie Lam, Jenny Ploeg, Sandra L Carroll, Wendy Duggleby, Carrie McAiney, Patricia Julian

Open access · goldAbstract read
In one paragraph

Article in SAGE open nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
0.3field-weighted citation impact, top 45% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Care Need Combinations for Dementia Patients with Multiple Chronic Diseases.Psychology research and behavior management · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 2 countries.

Annie LamLawrence S. Bloomberg Faculty of Nursing, University of Toronto.ORCID https://orcid.org/0000-0001-5516-1715
Jenny PloegAging, Community and Health Research Unit, School of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0001-8168-8449
Sandra L CarrollFaculty of Health Science, School of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0003-3936-6993
Wendy DugglebyAging and Quality of Life, Director of Innovations in Seniors Care Research Unit, Edmonton Clinic Health Academy, University of Alberta.
Carrie McAineyResearch Institute for Aging, School of Public Health and Health Systems, University of Waterloo.
Patricia JulianSchool of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-8386-3500
McMaster University · CABloomberg (United States) · USUniversity of Alberta · CAUniversity of Waterloo · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionFamily caregivers provide most of the care for older persons living with dementia (PLWD) and multiple chronic conditions (MCCs) in the community. Caregivers experience transitions, such as changes to their health, roles, and responsibilities, during the process of caring. Transitions encompass a time when caregivers undergo stressful responses to change. However, we know little about the transition experiences of caregivers of persons living with both dementia and MCCs.

objectiveThis qualitative study explored the transition experiences of caregivers of PLWD within the context of MCCs, from the perspective of both caregivers and practitioners. The research question was the following: What are the transition experiences of family caregivers in providing care to older PLWD and MCCs living in the community?

methodsThis study was conducted using an interpretive description approach. Semistructured interviews were conducted with 19 caregivers of older community-dwelling PLWD and MCCs and 7 health-care providers working with caregivers in Ontario, Canada. Concurrent data collection and inductive data analysis were used.

resultsCaregivers of older PLWD and MCCs experienced four key transitions: (a) taking on responsibility for managing multiple complex conditions, (b) my health is getting worse, (c) caregiving now defines my social life, and (d) expecting that things will change. Findings highlight how the coexistence of MCCs with dementia complicates caregiver transitions and the importance of social networks for facilitating transitions.

conclusionThe study provided insight on the transition experiences of caregivers of older PLWD and MCCs. MCCs increased the care load and further complicated caregivers' transition experiences. Health-care providers, such as nurses, can play important roles in supporting caregivers during these transitions and engage them as partners in care.

Indexed as

caregiverschronic illnessesdementiageriatricsqualitative research

Identifiers

PMID33415288
PMCPMC7774379
OpenAlexW2588256088

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.