ArticleJournal of the American Medical Informatics Association : JAMIA2021
Information blocking remains prevalent at the start of 21st Century Cures Act: results from a survey of health information exchange organizations.
Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Transforming Health Data to Actionable Information: Recent Progress and Future Opportunities in Health Information Exchange.Yearbook of medical informatics · 2022Pooled it
- Deploying the REACHnet Multi-State EHR-Based Network for Disease Surveillance (MENDS) node: lessons learned and tools utilized.JAMIA open · 2026Article
- Information-blocking trends following regulatory action.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Addressing Note Bloat: Solutions for Effective Clinical Documentation.Journal of the American College of Emergency Physicians open · 2025Article
- Technologies for Interoperable Internet of Medical Things Platforms to Manage Medical Emergencies in Home and Prehospital Care: Scoping Review.Journal of medical Internet research · 2025Article
- The adaptation of a single institution diabetes care platform into a nationally available turnkey solution.NPJ digital medicine · 2024Article
- Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis.BMJ quality & safety · 2024Article
- Cardiovascular Care Innovation through Data-Driven Discoveries in the Electronic Health Record.The American journal of cardiology · 2023Review
- US Residents' Preferences for Sharing of Electronic Health Record and Genetic Information: A Discrete Choice Experiment.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2023Article
- Machine Learning-Enabled Clinical Information Systems Using Fast Healthcare Interoperability Resources Data Standards: Scoping Review.JMIR medical informatics · 2023Article
- Clinical Informatics Approaches to Facilitate Cancer Data Sharing.Yearbook of medical informatics · 2023Review
- Experiences with information blocking in the United States: a national survey of hospitals.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Impact of the Immediate Release of Clinical Information Rules on Health Care Delivery to Patients With Cancer.JCO oncology practice · 2023Article
- A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era.Applied clinical informatics · 2023Article
- Six Digital Health Technologies That Will Transform Diabetes.Journal of diabetes science and technology · 2023Article
- Establishing a National Cardiovascular Disease Surveillance System in the United States Using Electronic Health Record Data: Key Strengths and Limitations.Journal of the American Heart Association · 2022Article
- The role of electronic health record developers in hospital patient sharing.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Era of Personal Health Records in Korea.Healthcare informatics research · 2022Article
- Constructing Epidemiologic Cohorts from Electronic Health Record Data.International journal of environmental research and public health · 2021Article
- Documenting Pharmacogenomic Test Results in Electronic Health Records: Practical Considerations for Primary Care Teams.Journal of personalized medicine · 2021Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
objectiveRecent policy making aims to prevent health systems, lectronic health record (EHR) vendors, and others from blocking the electronic sharing of patient data necessary for clinical care. We sought to assess the prevalence of information blocking prior to enforcement of these rules. MATERIALS AND
methodsWe conducted a national survey of health information exchange organizations (HIEs) to measure the prevalence of information blocking behaviors observed by these third-party entities. Eighty-nine of 106 HIEs (84%) meeting the inclusion criteria responded.
resultsThe majority (55%) of HIEs reported that EHR vendors at least sometimes engage in information blocking, while 30% of HIEs reported the same for health systems. The most common type of information blocking behavior EHR vendors engaged in was setting unreasonably high prices, which 42% of HIEs reported routinely observing. The most common type of information blocking behavior health systems engaged in was refusing to share information, which 14% of HIEs reported routinely observing. Reported levels of vendor information blocking was correlated with regional competition among vendors and information blocking was concentrated in some geographic regions. DISCUSSION: Our findings are consistent with early reports, revealing persistently high levels of information blocking and important variation by actor, type of behavior, and geography. These trends reflect the observations and experiences of HIEs and their potential biases. Nevertheless, these data serve as a baseline against which to measure the impact of new regulations and to inform policy makers about the most common types of information blocking behaviors.
conclusionEnforcement aimed at reducing information blocking should consider variation in prevalence and how to most effectively target efforts.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.