SynthesisJournal of cancer survivorship : research and practice2021
Health literacy in cancer caregivers: a systematic review.
Synthesis in Journal of cancer survivorship : research and practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed.
- Exploring the determinants of health literacy and its effects on health-related outcomes in family caregivers of patients with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Trial
- Developing critical thinking and decision-making skills for cancer information: the Informed Health Choice-Cancer online learning resource.Journal of cancer survivorship : research and practice · 2025Article
- Defining Family-Centered Cancer Care: A Group Concept Mapping Study.Psycho-oncology · 2025Article
- What can we learn from the evidence of psychosocial support for carers of people with cancer and how do we advance our efforts? A meta-review study.Journal of cancer survivorship : research and practice · 2025Review
- Preparedness for caregiving among caregivers of breast cancer patients and its association with health literacy and caregiving competence.Scientific reports · 2025Article
- Article
- Navigating life after gastric cancer surgery: a qualitative exploration of the dyadic patient-caregiver perspective on quality of life outcomes.BMC cancer · 2025Article
- Exploring Cancer Prevention Challenges for People with Intellectual Disabilities: Perspectives from Family Caregiver.Healthcare (Basel, Switzerland) · 2024Article
- Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Assessing the association between quantity and quality of family caregiver participation in decision-making clinical encounters on patient activation in the metastatic breast cancer setting.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- More competent informal caregivers reduce advanced cancer patients' unplanned healthcare use and costs.Cancer medicine · 2024Article
- Current status of electronic health literacy among pregnant women with gestational diabetes mellitus and their perceptions of online health information: a mixed-methods study.BMC pregnancy and childbirth · 2024Article
- Machine learning based models for predicting presentation delay risk among gastric cancer patients.Frontiers in oncology · 2024Article
- Health literacy, eHealth literacy and their association with burden, distress, and self-efficacy among cancer caregivers.Frontiers in psychology · 2024Article
- Development and validation of educational multimedia to promote public health literacy about healthy cognitive aging.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- A multinational investigation of healthcare needs, preferences, and expectations in supportive cancer care: co-creating the LifeChamps digital platform.Journal of cancer survivorship : research and practice · 2023Article
- Social determinants of health among family caregiver centered outcomes in lung cancer: a systematic review.Journal of thoracic disease · 2023Review
- Assessing the Comprehensive Training Needs of Informal Caregivers of Cancer Patients: A Qualitative Study.Current oncology (Toronto, Ont.) · 2023Article
- Risk factors associated with the comprehensive needs of cancer caregivers in China.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Brain Tumor at Diagnosis: From Cognition and Behavior to Quality of Life.Diagnostics (Basel, Switzerland) · 2023Review
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCancer caregivers play a vital role in the care and health decision-making of cancer survivors. Consequently, their health literacy levels may be particularly important, as low levels may impede adequate care provision. As such, the current review aimed to systematically examine the literature on health literacy amongst cancer caregivers.
methodsWe systematically searched the following databases using controlled vocabulary and free-text terms: PsychINFO, MEDLINE, EMBASE, CINAHL and Web of Science. Peer-reviewed empirical studies that explicitly measured and reported cancer caregiver health literacy levels were included.
resultsThe search yielded six articles consisting of 593 cancer caregivers exploring health literacy and eHealth literacy. There was substantial variation in health literacy measurement tools used across included studies, precluding the possibility of conducting a meta-analysis. The included articles reported significant associations (limited to single studies) between caregiver health/eHealth literacy and (i) cancer survivor demographics, (ii) caregivers' communication style, (iii) caregiver Internet access and (iv) caregiver coping strategies.
conclusionsFindings highlight a need for future longitudinal research regarding cancer caregiver health literacy incorporating more standardized and population-specific measurement approaches. In particular, there is a pressing need to investigate factors associated with cancer caregiver health literacy to inform the development/delivery of future interventions. IMPLICATIONS FOR CANCER SURVIVORS: Future high-quality research which investigates the factors which contribute towards sub-optimal health literacy amongst cancer caregivers would aid in the development of appropriate and effective health literacy interventions in these groups. Such interventions would allow this important group to provide appropriate support to cancer survivors and enhance survivors' engagement in their health and wellbeing.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.