ArticleBMJ open2021
Experiences of general practice of children with complex and palliative care needs and their families: a qualitative study.
Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed, 14 citations in OpenAlex.
- Palliative care provision for children in general practice: A retrospective cohort study.Palliative & supportive care · 2026Article
- Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice.BMC palliative care · 2026Article
- The role of general practitioners in transitioning adolescents with chronic conditions to adult health care.European journal of pediatrics · 2025Article
- Qualitative evaluation of a hospital-inpatient service for children with medical complexity.BMJ paediatrics open · 2025Article
- Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study.BMC palliative care · 2023Article
- Palliative Care in Paediatric Oncology: an Update.Current oncology reports · 2022Review
- Building capability in paediatric palliative care and enhancing education through the voice of parents: the Quality of Care Collaborative Australia.Palliative care and social practice · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesTo investigate the views and experiences of general practice of children with life-limiting and life-threatening conditions, and their family members, through secondary analysis of a qualitative serial interview study. Thematic analysis was conducted on all interview data relating to experiences of primary care.
settingWest Midlands, UK.
participantsA total of 31 participants (10 children with life-limiting and life-threatening conditions and 21 family members) from 14 families. STUDY DESIGN AND
settingSecondary thematic analysis of qualitative interview data from a study carried out in the West Midlands, UK.
method41 serial interviews with 31 participants from 14 families: 10 children aged 5-18 years with life-limiting and life-threatening conditions, and 21 of their family members.
resultsThree key themes emerged: (1) poor experiences of general practice cause children and families to feel isolated, (2) children and families value support from general practice, and (3) there are practical ways through which general practice has the potential to provide important aspects of care. Children and families reported benefits from fostering their relationship with their general practice in order to access important aspects of care, including the assessment and management of acute illness, chronic disease and medication reviews, and holistic support.
conclusionChildren with life-limiting and life-threatening conditions and their families value the involvement of general practice in the care, alongside their paediatric specialists. Ways of developing and providing such support as part of an integrated system of care need to be developed.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.