Evidence map›Paper›PMID 33407521›Full record

ArticleInternational journal for equity in health2021

Developing and validating measures of self-reported everyday and healthcare discrimination for Aboriginal and Torres Strait Islander adults.

Katherine A Thurber, Jennie Walker, Philip J Batterham, Gilbert C Gee, Jan Chapman, Naomi Priest, Rubijayne Cohen, Roxanne Jones, Alice Richardson, Alison L Calear and 2 more

Open access · goldAbstract readValidation Study
In one paragraph

Article in International journal for equity in health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
7.2field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.

  1. Pooled it
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  5. Anti-Indigenous racism in Canadian healthcare: a scoping review of the literature.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 3 institutions in 2 countries.

Katherine A ThurberNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia. katherine.thurber@anu.edu.au.ORCID 0000-0002-5626-1133
Jennie WalkerNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia.
Philip J BatterhamCentre for Mental Health Research, Research School of Population Health, Australian National University, 63 Eggleston Road, Acton, ACT, 2601, Australia.
Gilbert C GeeDepartment of Community Health, Fielding School of Public Health, University of California Los Angeles, 650 Charles E Young Dr S, Los Angeles, CA, 90095, USA.
Jan ChapmanNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia.
Naomi PriestCentre for Social Research and Methods, College of Arts and Social Sciences, Australian National University, Ellery Crescent, Acton, ACT, 2601, Australia.
Rubijayne CohenNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia.
Roxanne JonesNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia.
Alice RichardsonNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia.
Alison L CalearCentre for Mental Health Research, Research School of Population Health, Australian National University, 63 Eggleston Road, Acton, ACT, 2601, Australia.
David R WilliamsDepartment of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, 677 Huntington Avenue, Kresge Building, Boston, MA, 02115, USA.
Raymond LovettNational Centre for Epidemiology and Population Health, Research School of Population Health, Australian National University, 54 Mills Road, Acton, ACT, 2601, Australia.
Australian National University · AUHarvard University · USUniversity of California, Los Angeles · US

Funding

Scientific and Technical CoreP2CHD041022 · NICHD · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI Martha Jane Bailey · 2016 to 2026
$6.9M
NICHD NIH HHS P2C HD041022
6 · The paper itself

Abstract

backgroundIt is well established that racism is a fundamental contributor to poor health and inequities. There is consistent evidence of high exposure to discrimination among Aboriginal and Torres Strait Islander (Indigenous Australian) peoples, but impacts have not been fully quantified, in part due to limited measurement tools. We aim to validate instruments developed to measure interpersonal discrimination.

methodsInstruments were discussed at five focus groups and with experts, and field tested in developing Mayi Kuwayu: The National Study of Aboriginal and Torres Strait Islander Wellbeing. Data from 7501 baseline survey participants were analysed. Acceptability was assessed according to extent of missingness, construct validity using exploratory and confirmatory factor analysis, and reliability using Cronbach's alpha. Associations between each instrument and outcomes conceptually understood to be closely (community-level racism) or less closely (family wellbeing) related were quantified to test convergent and discriminant validity.

resultsAn 8-item instrument captures experiences of discrimination in everyday life and a 4-item instrument experiences in healthcare, each followed by a global attribution item. Item missingness was 2.2-3.7%. Half (55.4%) of participants reported experiencing any everyday discrimination, with 65.7% attributing the discrimination to Indigeneity; healthcare discrimination figures were 34.1% and 51.1%. Items were consistent with two distinct instruments, differentiating respondents with varying experiences of discrimination. Scales demonstrated very good reliability and convergent and divergent validity.

conclusionThese brief instruments demonstrate face validity and robust psychometric properties in measuring Aboriginal and Torres Strait Islander adults' experiences of interpersonal discrimination in everyday life and in healthcare. They can be used to quantify population-level experiences of discrimination, and associated wellbeing consequences, and monitor change.

Indexed as

Australian Aboriginal and Torres Strait Islander PeoplesHealthcare DisparitiesPsychometricsRacismAdolescentAdultAgedAged, 80 and overAustraliaFemaleHumansMaleMiddle AgedReproducibility of ResultsSelf ReportSocial Determinants of HealthHealth inequalitiesMeasurementMeasurement tool developmentPsychometricsSocial Epidemitology

Identifiers

PMID33407521
PMCPMC7788827
OpenAlexW3119124422

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.