ArticlePloS one2021
Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden.
Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 70 citations in OpenAlex.
- Efficacy of an Online Caregiver Learning Series for Promoting Daily Living Skills of Autistic Adolescents.Journal of autism and developmental disorders · 2026Article
- Coping strategies of parents of children with chronic diseases and their relationship with caregiving burden.BMC pediatrics · 2026Article
- Patient-centered burdens and economic outcomes among patients who are veterans, people with intellectual and developmental disabilities, and people living in rural areas and their caregivers: a scoping review.Frontiers in public health · 2026Article
- The mediating role of mindfulness and psychological resilience in the relationship between internalized stigma and caregiver burden among parents of children with Autism Spectrum Disorder.Frontiers in psychology · 2026Article
- Effects of Mindfulness-Based Cognitive Therapy on Parental Mental Health and Child Behavior in Families of Children with Autism Spectrum Disorder: A Randomized Controlled Trial.Children (Basel, Switzerland) · 2025Article
- The role of family quality of life in the caregivers of autistic adolescents receiving treatment for daily living skills.Research in autism · 2025Article
- I CAN-B Money Savvy! Teaching Adults with Intellectual and Developmental Disabilities to Make Purchasing Decisions Online.Journal of autism and developmental disorders · 2025Article
- Raising Autistic Children in Mainland China: A Qualitative Study of Parental Experiences and Challenges.Journal of autism and developmental disorders · 2025Article
- Caregiving for autistic children in Nigeria: experiences and challenges.Discover mental health · 2025Article
- Factors that Influence the Daily Living Skills of Autistic Adults: The Importance of Opportunity.Journal of autism and developmental disorders · 2024Article
- "Capable of much more": The effects of vocational training on caregiver expectations for neurodivergent dependents in Thailand.PloS one · 2024Article
- Urban and rural differences in needs, service use and satisfaction among caregivers of autistic children in Morocco.Autism : the international journal of research and practice · 2024Article
- A qualitative study of financial concerns of mothers' of adults with intellectual and developmental disabilities.International journal of developmental disabilities · 2024Article
- Impact of Respite Care Services Availability on Stress, Anxiety and Depression in Military Parents who have a Child on the Autism Spectrum.Journal of autism and developmental disorders · 2023Article
- The Ethics of Actually Helping People: Targeting Skill Acquisition Goals That Promote Meaningful Outcomes for Individuals with Autism Spectrum Disorder.Behavior analysis in practice · 2023Review
- Editorial: Improving the quality of life of autistic people and their caregivers from diverse backgrounds: methods and approaches.Frontiers in psychology · 2023Article
- Relationship between children with neurodevelopmental disorders and their caregivers and friends during early phase of COVID-19 school closure in Japan: Association with difficulty in implementing infection prevention measures.Child and adolescent psychiatry and mental health · 2022Article
- Care burden, coping styles and involvement in care in mothers of autistic children in pandemic of COVID-19.Nursing open · 2022Article
- Daily living skills of autistic adolescents and young adults: A scoping review.Australian occupational therapy journal · 2022Article
- Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science.Journal of child psychology and psychiatry, and allied disciplines · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite the joy of parenting, the burden of daily caregiving for children with autism spectrum disorders (ASD) can be overwhelming and constant. Parents can expect to provide enduring care for their children with ASD. Given that the majority of individuals with autism spectrum disorders (ASD) remain in their family homes well into adulthood, often the need for assistance with activities of daily living (ADLs) is placed on parents. Providing ongoing support to adult children who have difficulty with completing ADLs can increase parental caregiving demands. Therefore, the purpose of this study was to examine the relationship between the ability of adults with ASD to perform ADLs with parental perceptions of caregiver burden.
methodsQuantitative analysis of cross-sectional multi-state data gathered electronically using Qualtrics from 320 aging parents of adults with ASD was conducted. Regression models were fit to examine the association of ADL challenges with total caregiver burden and its four domains (emotional, financial, time dependence, and developmental).
resultsParental perceptions of caregiver burden decreased, particularly time dependence and developmental burden, when adult children were less dependent in ADLs, even after adjusting for parental health and behavioral challenges.
conclusionsFindings support the need for family-centered interventions to improve the capacity of adults with ASD to perform ADLs independently.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.