ArticleBMC health services research2021
The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLE-onco): a longitudinal multiple case study protocol.
Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- Patients as Co-Researchers in Oncology: A Qualitative Exploration of Participatory Governance.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The Ethical Foundations of Accompanying Patients: The Need for Institutionalization.Journal of bioethical inquiry · 2026Article
- A complex intervention to improve life experience during and after acute treatment for breast cancer: Preliminary results from intervention development for the Continuum PAROLE-Onco 360 program.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- Implementation and evaluation of a peer-to-peer support program in oncology: study protocol for the PaRole Onco France model.Archives of public health = Archives belges de sante publique · 2026Article
- Role, Resources, and Integration of Accompanying Patients in Oncology: A Qualitative Study from the Accompanying Patient's Perspective.Current oncology (Toronto, Ont.) · 2025Article
- From innovation to practice: factors influencing implementation of the PAROLE-Onco peer support program.BMC health services research · 2025Article
- Fostering Physician-Patient Partnerships: The Importance of Embracing the Ontological and Epistemological Understandings of Knowledge.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Towards a New Integrated Model for Taking Into Account the Experiential Knowledge of People With Chronic Diseases, Integrating Mediation, Therapeutic Education and Partnership: The Expanded Chronic Care Patient-Professional Partnership Model.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- The black box of the relationship between breast cancer patients and accompanying patients: the accompanied patients' point of view.BMC cancer · 2024Article
- Care and services partnership in Quebec birthing centres: myth or reality?BMC pregnancy and childbirth · 2024Article
- Integrating accompanying patients into clinical oncology teams: limiting and facilitating factors.BMC health services research · 2024Article
- Article
- Accompanying patients in clinical oncology teams: Reported activities and perceived effects.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Improving Palliative Care and Medical Assistance in Dying Practice in Canada: How Patients-Partners Could Contribute to Continuing Medical Education.Palliative medicine reports · 2023Article
- "I Want to Help Others Like Me": A Pilot Qualitative Study on Patients' Participation in a Screening for Distress Program.Journal of patient experience · 2022Article
- Correction to: The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLEonco): a longitudinal multiple case study protocol.BMC health services research · 2021Article
Corrections and comments
- Erratum issued
Authors and funding
20 authors.
Funding
Abstract
backgroundQuebec is one of the Canadian provinces with the highest rates of cancer incidence and prevalence. A study by the Rossy Cancer Network (RCN) of McGill university assessed six aspects of the patient experience among cancer patients and found that emotional support is the aspect most lacking. To improve this support, trained patient advisors (PAs) can be included as full-fledged members of the healthcare team, given that PA can rely on their knowledge with experiencing the disease and from using health and social care services to accompany cancer patients, they could help to round out the health and social care services offer in oncology. However, the feasibility of integrating PAs in clinical oncology teams has not been studied. In this multisite study, we will explore how to integrate PAs in clinical oncology teams and, under what conditions this can be successfully done. We aim to better understand effects of this PA intervention on patients, on the PAs themselves, the health and social care team, the administrators, and on the organization of services and to identify associated ethical and legal issues. METHODS/
designWe will conduct six mixed methods longitudinal case studies. Qualitative data will be used to study the integration of the PAs into clinical oncology teams and to identify the factors that are facilitators and inhibitors of the process, the associated ethical and legal issues, and the challenges that the PAs experience. Quantitative data will be used to assess effects on patients, PAs and team members, if any, of the PA intervention. The results will be used to support oncology programs in the integration of PAs into their healthcare teams and to design a future randomized pragmatic trial to evaluate the impact of PAs as full-fledged members of clinical oncology teams on cancer patients' experience of emotional support throughout their care trajectory. DISCUSSION: This study will be the first to integrate PAs as full-fledged members of the clinical oncology team and to assess possible clinical and organizational level effects. Given the unique role of PAs, this study will complement the body of research on peer support and patient navigation. An additional innovative aspect of this study will be consideration of the ethical and legal issues at stake and how to address them in the health care organizations.
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