ArticleAfrican journal of disability2020
Perspectives of working-age adults with aphasia regarding social participation.
Article in African journal of disability, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Navigating the Complexity of Bilingual Aphasia: Current Insights and Future Directions.Brain sciences · 2025Review
- Factors influencing person-centred care: Speech-language pathologists and audiologists perspective.African journal of disability · 2025Article
- Experiences of acquired brain injury one-month post-discharge from acute hospitalisation.African journal of disability · 2023Article
- International Classification of Functioning, Disability, and Health-based rehabilitation program promotes activity and participation of post-stroke patients.Frontiers in neurology · 2023Article
- The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis.Research involvement and engagement · 2022Article
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Authors and funding
4 authors.
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Abstract
backgroundWorking-age adults with aphasia experience difficulties in social participation, specifically fulfilling social roles and reintegrating into communities. Literature regarding social participation of people with aphasia (PWA) is predominantly based on studies conducted in high-income countries (HIC), limiting generalisability of findings. Perspectives of social participation are influenced by person, place and cultural background warranting investigation in heterogeneous low- and middle-income countries (LMICs), like South Africa.
objectivesDescribe perspectives of working-age adults with aphasia regarding social participation within the first 2 years post-incident.
methodSemi-structured interviews gained perspectives of 10 working-age adults (with mild to moderate aphasia) using principles of supported conversation for adults with aphasia. Data were thematically analysed to describe participants' perspectives of social participation.
resultsSeven themes were identified pertaining to participants' perspectives of social participation. Participants considered rehabilitation services, faith-related activities and returning to work as valued areas of social participation. Previous interests, presence of support and characteristics of communication partners determined their preference and willingness to participate with others. Finally, personal attitudes and feelings continued to influence their perspectives of social participation, as well as their motivation to participate.
conclusionSuccessful social participation was dependent on the PWA's perceived value of social activities and presence of support from significant others. Speech-language therapists are in the ideal position to facilitate PWA's communication abilities and their experience of successful participation through the implementation of person-centered care and community-led intervention. This study provided a preliminary investigation of social participation in South Africa and further investigation is warranted.
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