ArticleAmerican journal of critical care : an official publication, American Association of Critical-Care Nurses2021
What Matters to Patients and Their Families During and After Critical Illness: A Qualitative Study.
Article in American journal of critical care : an official publication, American Association of Critical-Care Nurses, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 35 papers, 1 of them a synthesis that pooled it.
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Who cites it
35 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Rehabilitation and Social Determinants of Health in Critical Illness Recovery Literature: A Systematic Review.Critical care explorations · 2024Pooled it
- Effects of an early restrictive versus liberal fluid strategy on long-term patient-centered outcomes in sepsis-induced hypotension: an open-label, randomized controlled trial.American journal of respiratory and critical care medicine · 2026Trial
- Acute Respiratory Failure Survivors' Perspectives on Patient-Centered Communication: A Mixed Methods Study.Critical care explorations · 2026Observational
- Article
- Improving long-term trajectories in very old survivors of intensive care: a narrative review.European geriatric medicine · 2026Review
- Post-Intensive Care Syndrome Awareness and Communication: Surveys of ICU Providers and Patients.Chest · 2026Article
- Challenges and strategies in the care of older adults across the continuum of intensive and post-intensive care medicine.Intensive care medicine · 2026Review
- The ICU Care Plan: Human-Centered Design of a Tool to Support Time-Limited Trials for Older Adults With Critical Illness.Journal of the American Geriatrics Society · 2025Article
- Review
- Identifying distinct clusters of ICU survivors by integrating demographic, pre-admission quality of life, and clinical data: a large prospective cohort study.Intensive care medicine · 2025Article
- Predicting Post-ICU Functional Impairment During Early ICU Admission Using Real-world Electronic Health Record Data.Clinical nursing research · 2025Article
- Insights from the top-cited papers in the critical care nursing literature: A bibliometric and visualized analysis.Nursing in critical care · 2025Article
- Patients' and family members' dyadic experience of post-operative delirium in the intensive care unit: A qualitative study.Nursing in critical care · 2025Article
- Article
- Feasibility of In-Hospital Administration of a Tool to Predict Persistent Post-ICU Functional Impairment Among Older ICU Survivors: A Pilot Study.CHEST critical care · 2024Article
- Hospital-free days: A novel measure to study outcomes for emergency department care.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2024Article
- Characterizing the Use of Time-Limited Trials in Patients With Acute Respiratory Failure: A Prospective, Single-Center Observational Study.Critical care explorations · 2024Observational
- Achieving Goals of Care Decisions in Chronic Critical Illness: A Multi-Institutional Qualitative Study.Chest · 2024Article
- Factors Associated With Quality-of-Dying-and-Death Classes Among Critically Ill Patients.JAMA network open · 2024Observational
- Measuring Quality-weighted Hospital-Free Days in Acute Respiratory Failure: A Modified Delphi Study.Annals of the American Thoracic Society · 2024Article
Corrections and comments
- Erratum issuedCorrection.2021
Authors and funding
6 authors.
Funding
Abstract
backgroundDespite increased emphasis on providing higher-quality patient- and family-centered care in the intensive care unit (ICU), there are no widely accepted definitions of such care in the ICU.
objectivesTo determine (1) aspects of care that patients and families valued during their ICU encounter, (2) outcomes that patients and families prioritized after hospital discharge, and (3) outcomes perceived as equivalent to or worse than death.
methodsSemistructured interviews (n = 49) of former patients of an urban, academic medical ICU and their family members. Two investigators reviewed all transcripts line by line to identify key concepts. Codes were created and defined in a codebook with decision rules for their application and were analyzed using qualitative content analysis.
resultsSalient themes were identified and grouped into 2 major categories: (1) processes of care within the ICU- communication, patient comfort, and a sense that the medical team was "doing everything" (ie, providing exhaustive medical care) and (2) patient and surrogate outcomes after the ICU-survival, quality of life, physical function, and cognitive function. Several outcomes were deemed worse than death: severe cognitive/physical disability, dependence on medical machinery/equipment, and severe/constant pain.
conclusionAlthough survival was important, most participants qualified this preference. Simple measures of mortality rates may not represent patient- or family-centered outcomes in evaluations of ICU-based interventions, and new measures that incorporate functional outcomes and patients' and family members' views of life quality are necessary to promote patient-centered, evidence-based care.
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