ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2021
Family Caregiving and Place of Death: Insights From Cross-national Analysis of the Harmonized End-of-Life Data.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 21 citations in OpenAlex.
- Socioeconomic and clinical predictors of all-cause mortality among older adults in India from 2017 to 2024: the importance of cognitive health and dementia.The journals of gerontology. Series A, Biological sciences and medical sciences · 2026Article
- Place of death for people with dementia: A scoping review.PloS one · 2026Article
- Characteristics and population estimates of unpaid end of life carers: An observational study.Palliative medicine · 2025Observational
- Kinlessness and end-of-life care quality: does race and ethnicity matter?The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Caregivers influence preferred place of death for patients with an advanced cancer.Palliative & supportive care · 2025Article
- Measurement and documentation of quality indicators for the end-of-life care of hospital patients a nationwide retrospective record review study.BMC palliative care · 2023Article
- End-of-Life Experiences Among "Kinless" Older Adults: A Nationwide Register-Based Study.Journal of palliative medicine · 2023Article
- Availability of family care resources, type of primary caregiving and home death among the oldest-old: A population-based retrospective cohort study in China.SSM - population health · 2022Article
- "That Little Bit of Time": Transition-to-Hospice Perspectives From Hospice Staff and Bereaved Family.Innovation in aging · 2022Article
- Cross-National Comparisons of Social and Economic Contexts of Aging.The journals of gerontology. Series B, Psychological sciences and social sciences · 2021Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
objectivesFamily is largely overlooked in research on factors associated with place of death among older adults. We determine if family caregiving at the end of life is associated with place of death in the United States and Europe.
methodWe use the Harmonized End of Life data sets developed by the Gateway to Global Aging Data for the Survey of Health, Ageing and Retirement in Europe (SHARE) and the Health and Retirement Study (HRS). We conducted multinomial logistic regression on 7,113 decedents from 18 European countries and 3,031 decedents from the United States to determine if family caregiving, defined based on assistance with activities of daily living, was associated with death at home versus at a hospital or nursing home.
resultsFamily caregiving was associated with reduced odds of dying in a hospital and nursing home, relative to dying at home in both the United States and Europe. Care from a spouse/partner or child/grandchild was both more common and more strongly associated with place of death than care from other relatives. Associations between family caregiving and place of death were generally consistent across European welfare regimes. DISCUSSION: This cross-national examination of family caregiving indicates that family-based support is universally important in determining where older adults die. In both the United States and in Europe, most care provided during a long-term illness or disability is provided by family caregivers, and it is clear families exert tremendous influence on place of death.
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