ArticleThe American journal of bioethics : AJOB2021
Supported Decision Making With People at the Margins of Autonomy.
Article in The American journal of bioethics : AJOB, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed.
- Choosing how to decide: empowering patients for shared decision-making in end-of-life care.Medicine, health care, and philosophy · 2026Article
- Common Consent Elements for Research Involving Persons with Disorders of Consciousness (CCE-DOC).Neurocritical care · 2026Article
- Evaluating Large Language Models for AI-Assisted Decision Support in Legal Capacity Assessment: A Comparative Study Using Interdisciplinary Medical Board Recommendations as the Expert Medical Reference Standard.Healthcare (Basel, Switzerland) · 2026Article
- Designing Consent Processes for Research With Older Adults Who May Lack Decisional Capacity: A Guide for Investigators.Journal of the American Geriatrics Society · 2026Article
- Mind Care: The Moral Significance of the Dementia Caregiving Dyad.The American journal of bioethics : AJOB · 2026Article
- An Ethics Framework for Medical Assistance in Dying: Supporting Ethical Decision-Making in the Practice of MAiD.Bioethics · 2026Article
- What Matters Most to People Living With Dementia and Their Care Partners During Emergency Department Visits.Journal of the American Geriatrics Society · 2026Article
- Support in Decision-Making for All.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2026Article
- Article
- "Changeons les Règles!" development and feasibility testing of an encounter decision aid for menstrual management in adolescents and young adults with developmental disabilities.PEC innovation · 2025Article
- Transitions to Long-Term Care for People Living with Dementia: Social Death and Social (Dis) Connections.Nursing reports (Pavia, Italy) · 2025Article
- Stakeholder perspectives on the role of caregivers in cancer clinical trial decision-making: results of a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Medical decision-making experiences of persons with dementia and their carepartners: a qualitative study.BMC palliative care · 2025Article
- Can bioethics bray? Non-human animals, biosemiotics, and a road to shared decision-making.Theoretical medicine and bioethics · 2025Article
- Designing an intervention to improve cognitive evaluations in primary care.Implementation science communications · 2025Article
- Facing the new diagnostic and treatment options of Alzheimer's disease: The necessity of informed consent.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Applying recommendations for diagnostic disclosure of mild cognitive impairment and dementia: Practical guidance for clinicians.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Observational
- When a Patient Is at Foreseeable Risk of Losing Decisional and Functional Capacity.The journal of the American Academy of Psychiatry and the Law · 2024Article
- Self-Determination Research: Current and Future Directions.Behavioral sciences (Basel, Switzerland) · 2024Review
- Supported decision making: Facilitating the self-determination of persons living with Alzheimer's and related diseases.Journal of the American Geriatrics Society · 2023Article
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Authors and funding
3 authors.
Funding
Abstract
This article argues that supported decision making is ideal for people with dynamic cognitive and functional impairments that place them at the margins of autonomy. First, we argue that guardianship and similar surrogate decision-making frameworks may be inappropriate for people with dynamic impairments. Second, we provide a conceptual foundation for supported decision making for individuals with dynamic impairments, which integrates the social model of disability with relational accounts of autonomy. Third, we propose a three-step model that specifies the necessary conditions of supported decision making: identifying domains for support; identifying kinds of supports; and reaching a mutually acceptable and formal agreement. Finally, we identify a series of challenges for supported decision making, provide preliminary responses, and highlight avenues for future bioethics research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.