Evidence map›Paper›PMID 33367781›Full record

SynthesisNephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association2021

Patient-reported outcome measures for life participation in peritoneal dialysis: a systematic review.

Karine E Manera, Angela Ju, Amanda Baumgart, Elyssa Hannan, Wenjing Qiao, Martin Howell, Melissa Nataatmadja, Martin Wilkie, Fiona Loud, Daniel Schwartz and 13 more

Open access · greenAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.

  1. Pooled it
  2. Occupational Priorities of People on Hemodialysis Who Participated in Energy Management Education.Canadian journal of occupational therapy. Revue canadienne d'ergotherapie · 2025
    Trial
  3. Article
  4. Article
  5. Article
  6. Article
  7. Epidemiology of peritoneal dialysis outcomes.Nature reviews. Nephrology · 2022
    Review
  8. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

23 authors at 17 institutions in 7 countries.

Karine E ManeraSydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Angela JuSydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Amanda BaumgartSydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Elyssa HannanCentre for Kidney Research, Children's Hospital at Westmead, Westmead, NSW, Australia.
Wenjing QiaoCentre for Kidney Research, Children's Hospital at Westmead, Westmead, NSW, Australia.
Martin HowellSydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Melissa NataatmadjaSunshine Coast Hospital and Health Service, Sunshine Coast University Hospital, Kawana Waters, QLD, Australia.
Martin WilkieDepartment of Nephrology, Sheffield Teaching Hospital NHS Foundation Trust, Sheffield, UK.
Fiona LoudKidney Care UK, Alton, UK.
Daniel SchwartzDivision of Nephrology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada.
Helen HurstManchester Academic Health Science Centre, Manchester University NHS Foundation Trust, University of Manchester, Manchester, UK.
Sarbjit Vanita JassalDivision of Nephrology, Department of Medicine, University Health Network, University of Toronto, Toronto, ON, Canada.
Ana FigueiredoSchool of Science and Life, Nursing School Pontifical Catholic University of Rio Grande do Sul, Porto Alegre, Brazil.
Rajnish MehrotraKidney Research Institute and Harborview Medical Center, Division of Nephrology/Department of Medicine, University of Washington, Seattle, WA, USA.
Jenny ShenDivision of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.
Rachael L MortonNHMRC Clinical Trials Centre, University of Sydney, Sydney, NSW, Australia.
Thyago MoraesSchool of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Paraná, Brazil.
Rachael WalkerSchool of Nursing, Eastern Institute of Technology, Hawke's Bay, New Zealand.
Catherine CheungFraser Health Authority, British Columbia, Canada.
Janine F FarragherDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.
Jonathan CraigCollege of Medicine and Public Health, Flinders University, Adelaide, SA, Australia.
David W JohnsonDepartment of Nephrology, Princess Alexandra Hospital, Brisbane, QLD, Australia.
Allison TongSydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
The University of Sydney · AUChildren's Hospital at Westmead · AUEastern Institute of Technology · NZFlinders University · AUFraser Health · CAKidney Care UK · GBNational Taiwan University · TWPontifícia Universidade Católica do Paraná · BRSheffield Teaching Hospitals NHS Foundation Trust · GBSunshine Coast University Hospital · AUTaipei Medical University-Shuang Ho Hospital · TWThe Lundquist Institute · USThe University of Queensland · AUUniversity Health Network · CAUniversity of British Columbia · CAUniversity of Calgary · CAUniversity of Washington · US

Funding

Trajectories of Adherence to Cardiovascular Medications in Patients on DialysisK23DK103972 · NIDDK · LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER · PI SHEN, JENNY I · 2015 to 2019
$934k
NIDDK NIH HHS K23 DK103972
6 · The paper itself

Abstract

backgroundPatients receiving peritoneal dialysis (PD) endure an ongoing regimen of daily fluid exchanges and are at risk of potentially life-threatening complications and debilitating symptoms that can limit their ability to participate in life activities. The aim of the study was to identify the characteristics, content and psychometric properties of measures for life participation used in research in PD.

methodsWe searched MEDLINE, Embase, PsychInfo, the Cumulative Index to Nursing and Allied Health Literature (CINAHL) and the Cochrane Central Register of Controlled Trials from inception to May 2020 for all studies that reported life participation in patients on PD. The characteristics, dimensions of life participation and psychometric properties of these measures were extracted and analyzed.

resultsOf the 301 studies included, 17 (6%) were randomized studies and 284 (94%) were nonrandomized studies. Forty-two different measures were used to assess life participation. Of these, 23 (55%) were used in only one study. Fifteen (36%) measures were specifically designed to assess life participation, while 27 (64%) measures assessed broader constructs, such as quality of life, but included questions on life participation. The 36-Item Short Form Health Survey and Kidney Disease Quality of Life Short Form were the most frequently used measures [122 (41%) and 86 (29%) studies, respectively]. Eight (19%) measures had validation data to support their use in patients on PD.

conclusionsThe many measures currently used to assess life participation in patients receiving PD vary in their characteristics, content and validation. Further work to pilot and validate potential measures is required to establish a core patient-reported outcome measure to assess life participation in patients receiving PD.

Indexed as

Patient Reported Outcome MeasuresAdultHumansPeritoneal DialysisPsychometricsQuality of Lifelife participationoutcome measuresperitoneal dialysis

Identifiers

PMID33367781
PMCPMC8075374
OpenAlexW3117843615

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.