ArticleAfrican journal of disability2020
Illuminating the empowerment journey of caregivers of children with disabilities: Understanding lessons learnt from Ghana.
Article in African journal of disability, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Rehabilitation for children with cerebral palsy in a lower-middle income country: A qualitative phenomenological study.Developmental medicine and child neurology · 2026Article
- Improving family functioning and wellbeing among families of children with disabilities in Rwanda: an application of the SAFE child protection model.Frontiers in psychiatry · 2026Article
- Caregivers' Experience of Supporting Deaf Adults with Mental Health Disorders in Ghana.International journal of environmental research and public health · 2025Article
- Centering caregiver voices on caregiving needs of children with neurodevelopmental disorders in low-resource settings.PloS one · 2025Article
- Stigma reduction in a disability and mental health programme in Ghana: Lessons in participation.African journal of disability · 2025Article
- Empowerment ability of main caregivers of children with intracranial tumors after surgery: a cross-sectional survey.Frontiers in pediatrics · 2025Article
- Caregiver-centred empowerment for families raising autistic children: A qualitative case study from Argentina.Autism : the international journal of research and practice · 2024Article
- Conceptualising the empowerment of caregivers raising children with developmental disabilities in Ethiopia: a qualitative study.BMC health services research · 2023Article
- Experiences, Motivations, and Perceived Impact of Participation in a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study.JMIR pediatrics and parenting · 2022Article
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5 authors.
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Abstract
backgroundEmpowerment is an increasingly popular goal, considered core to a transformative agenda for children with disabilities and their families. However, it can still be a poorly understood concept in practice.
objectiveThis article is an empirical analysis of the 'empowerment journeys' of caregivers participating in a community-based training programme in Ghana.
methodIn-depth interviews were conducted with 18 caregivers at three time points over 14 months. Thematic analysis was conducted on the full data set, with three representative case studies selected for more detailed analysis to illustrate the dynamism of time and context in shaping the empowerment journey.
resultsOur findings illuminate the complexity and non-linearity of the caregiver empowerment journey. There were important gains in individual dimensions of power and the nascent emergence of collective power, through improved knowledge and valuable peer support from group membership. However, further gains were impeded by their limited influence over wider economic and sociopolitical structural issues that perpetuated their experiences of poverty, stigma and the gendered nature of caregiving. The support group facilitator often played a valuable brokering role to help traverse individual agency and structural issues.
conclusionA richer and more nuanced understanding of caregiver empowerment in the community and family context can inform the wider discourse on disability. Guidelines on working with people with disabilities, and the role of empowerment, should not neglect the pivotal role of caregivers. There are important lessons to be learnt if we want to improve family-centred interventions and transform the lives of children with disabilities.
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