Evidence map›Paper›PMID 33352669›Full record

ArticleInternational journal of environmental research and public health2020

How Many Older Informal Caregivers Are There in Europe? Comparison of Estimates of Their Prevalence from Three European Surveys.

Aviad Tur-Sinai, Andrea Teti, Alexander Rommel, Valentina Hlebec, Giovanni Lamura

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers.

0numbers the graph read from it
0cells of the map it votes in
49citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

49 citing papers in PubMed.

  1. Which resilience-related factors are important for anxiety, depression, and stress in cancer caregivers?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  10. Deterioration of health-related quality of life: the hidden health burden of informal caregiving.The European journal of health economics : HEPAC : health economics in prevention and care · 2025
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  18. Using the K-Means Node Clustering Method and ROC Curve Analysis to Define Cut-Off Scores for the Caregiving System Scale.International journal of psychology : Journal international de psychologie · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Aviad Tur-SinaiDepartment of Health Systems Management, The Max Stern Yezreel Valley College, 1930600 Yezreel Valley, Israel.
Andrea TetiInstitute for Gerontology, University of Vechta, D-49377 Vechta, Germany.ORCID 0000-0002-2112-4112
Alexander RommelEpidemiology and Health Monitoring, Robert Koch-Institute, 10439 Berlin, Germany.ORCID 0000-0001-7253-0535
Valentina HlebecFaculty of Social Sciences, University of Ljubljana, 1000 Ljubljana, Slovenia.
Giovanni LamuraINRCA IRCCS-National Institute of Health and Science on Ageing, Centre for Socio-Economic Research on Ageing, 60124 Ancona, Italy.ORCID 0000-0001-9278-9544

Funding

Understanding and Improving Healthcare Decision-Making and Outcomes for People Living with Alzheimer's Disease and Related DementiasP01AG005842 · NIA · NATIONAL BUREAU OF ECONOMIC RESEARCH · PI KOSALI ILAYPERUMA SIMON · 1986 to 2026
$56.5M
DEVELOPING AN ISRAELI VERSION OF THE HRS/SHARE PROJECTR21AG025169 · NIA · HEBREW UNIVERSITY OF JERUSALEM · PI LITWIN, HOWARD · 2004 to 2006
$297k
NIA NIH HHS HHSN271201300071CNIA NIH HHS P01 AG005842NIA NIH HHS R21 AG025169
6 · The paper itself

Abstract

Informal caregivers are people providing some type of unpaid, ongoing assistance to a person with a chronic illness or disability. Long-term care measures and policies cannot take place without taking into account the quantitatively crucial role played by informal caregivers. We use the European Health Interview Survey (EHIS), the European Quality of Life Survey (EQLS), and the Study on Health and Ageing in Europe (SHARE) to measure the prevalence of informal caregivers in the European population, and analyze associated socio-demographic factors. This rate ranges between about 13 percent in Portugal and Spain, and more than 22 percent in Luxembourg, Belgium, and Denmark. It declines in older age groups and, on average, is lower in men than in women in all countries studied, and lower among the poorly educated compared to those with higher levels of education. However, large variance was observed in the average share of informal caregivers for most countries between the three surveys. Our findings, estimated through the three surveys, reveal common trends, but also a series of disparities. Additional research will be needed to enable policy makers to access a richer and more harmonized body of data, allowing them to adopt truly evidence-based and targeted policies and interventions in this field.

Indexed as

AgedAged, 80 and overCaregiversEuropeFemaleHumansMalePatient CarePrevalenceQuality of Lifeharmonizationinformal caregiversurveyunpaid care

Identifiers

PMID33352669
PMCPMC7767284

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.