Evidence map›Paper›PMID 33349988›Full record

ArticleJournal of clinical nursing2021

Disclosure experience among COVID-19-confirmed patients in China: A qualitative study.

Wenxiu Sun, Ying Zhou, Wei-Ti Chen, Feifei Huang, Meiyan Sun, Lei Shen, Yan Gao, Qing Zhang, Siyue Ma, Chengshi Shiu and 2 more

Abstract read
In one paragraph

Article in Journal of clinical nursing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Wenxiu SunShanghai Public Health Clinical Center, Fudan University, Shanghai, China.ORCID https://orcid.org/0000-0002-3653-6443
Ying ZhouShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Wei-Ti ChenSchool of Nursing, University of California Los Angeles, Los Angeles, CA, USA.ORCID https://orcid.org/0000-0002-2342-045X
Feifei HuangSchool of Nursing, Fujian Medical University, Fuzhou, China.
Meiyan SunShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Lei ShenShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Yan GaoShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Qing ZhangShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Siyue MaShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Chengshi ShiuDepartment of Social Work, National Taiwan University, Taipei, Taiwan.
Lin ZhangShanghai Public Health Clinical Center, Fudan University, Shanghai, China.
Hongzhou LuShanghai Public Health Clinical Center, Fudan University, Shanghai, China.

Funding

UCLA Rapid, Relevant, Rigorous Implementation Science HubP30MH058107 · NIMH · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI Nina Thawata Harawa · 1997 to 2026
$53.5M
Research Education Institute for Dynamic Scholars (REIDS)R25MH087217 · NIMH · YALE UNIVERSITY · PI Jasmine Abrams, Trace S Kershaw · 2010 to 2026
$3.9M
Project BURMESE: Buddhist Understanding and Reduction of Myanmarese Experiences of HIV Stigma and ExclusionR21TW011277 · FIC · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI CHEN, WEI-TI · 2020 to 2021
$378k
FIC NIH HHS R21 TW011277FIC NIH HHS R21TW011277Fudan University Science Establishment IDF162005NIMH NIH HHS P30 MH058107NIMH NIH HHS P30MH058107NIMH NIH HHS R25MH087217Novel coronavirus "2019-NCOV" research project of Shanghai Public Health Clinical Center 2020YJKY01UCLA CTSI/SON Intramural fund March 2020
6 · The paper itself

Abstract

aimTo understand COVID patients' experiences of and perspectives on disclosure of their illness and to explore and describe the factors affecting disclosure decisions among COVID patients in China.

backgroundDisease disclosure is a critical component of prevention and control of a virus outbreak, and this is especially true during the COVID-19 pandemic. Understanding COVID patients' experiences and perspectives on disclosure could play a vital role in COVID management.

designA qualitative study.

methodsA semi-structured interview guide was used to conduct qualitative in-depth interviews from April to June 2020. All the interviews were audio-recorded and transcribed, and then, a thematic analysis was conducted. The Standards for Reporting Qualitative Research (SRQR) were applied to this study.

resultsA total of 26 COVID-confirmed patients were recruited for the in-depth interviews. Four themes emerged from the thematic analysis on disclosure: persons disclosed to, reasons for disclosure, reasons for nondisclosure and impact of disclosure. The participants disclosed their COVID diagnosis to different groups, including family, close friends, community members and workplace contacts. The main reasons for disclosure included the following: government policy, social responsibility, gaining support and fear of being blamed for nondisclosure. However, some participants decided not to disclose to some groups for fear of facing stigma and discrimination or to protect family members from discrimination. Despite the potential benefits of obtaining support after disclosure, many participants did experience stigma and discrimination, privacy exposure, psychological distress and social isolation.

conclusionsAn individual's decision as to whether to disclose their COVID-positive status is affected by many factors. To prevent the spread of COVID-19 and reduce the potential risks of disclosure, such as discrimination and privacy exposure, a balanced intervention should be designed to protect COVID patients and to secure any contact tracing. Therefore, the chances of discrimination could be decreased and patients' confidentiality could be protected. RELEVANCE TO CLINICAL PRACTICE: As the number of COVID patients increases, disclosure of an individual's infectious status is encouraged by health departments. Despite the potential benefits of disclosure, discrimination and privacy exposure should not be ignored. A disclosure protocol is necessary to ensure patients' privacy regarding their COVID status.

Indexed as

COVID-19DisclosurePatientsChinaConfidentialityDecision MakingFearHumansPsychological DistressQualitative ResearchSocial DiscriminationSocial IsolationSocial StigmaChinaCOVIDdisclosurequalitative study

Identifiers

PMID33349988
PMCPMC9205648

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.