ArticleAlzheimer's & dementia (New York, N. Y.)2020
What patients want to know, and what we actually tell them: The ABIDE project.
Article in Alzheimer's & dementia (New York, N. Y.), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
14 citing papers in PubMed, 19 citations in OpenAlex.
- A tool supporting person-centred communication among people with cognitive complaints, care partners, and clinicians: a feasibility study.PEC innovation · 2026Article
- Patients' and care partners' views on communicating the cause of dementia and related uncertainties: A qualitative study.Journal of Alzheimer's disease : JAD · 2026Article
- Observed and Patient-Perceived Information Provision When Diagnosed With Parkinson's Disease.Movement disorders clinical practice · 2025Observational
- Usability and feasibility of ADappt: a digital toolkit to support communication on diagnosis and prognosis in memory clinics.Alzheimer's research & therapy · 2025Article
- The expectations and experiences of patients regarding the diagnostic workup at a specialized memory clinic: An interview study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Patient preferences and experiences of participation in surgical cancer care.Worldviews on evidence-based nursing · 2022Article
- Giving meaning to the scores of the Amsterdam instrumental activities of daily living questionnaire: a qualitative study.Health and quality of life outcomes · 2022Article
- Development and design of a diagnostic report to support communication in dementia: Co-creation with patients and care partners.Alzheimer's & dementia (Amsterdam, Netherlands) · 2022Article
- Clinical application of CSF biomarkers for Alzheimer's disease: From rationale to ratios.Alzheimer's & dementia (Amsterdam, Netherlands) · 2022Article
- Assessing the Views of Professionals, Patients, and Care Partners Concerning the Use of Computer Tools in Memory Clinics: International Survey Study.JMIR formative research · 2021Article
- Commentary: Aducanumab: Appropriate Use Recommendations.The journal of prevention of Alzheimer's disease · 2021Article
- What patients want to know, and what we actually tell them: The ABIDE project.Alzheimer's & dementia (New York, N. Y.) · 2020Article
- Usability assessment of a digital tool to enhance person-clinician communication in the memory clinic: An expert evaluation.Digital healthArticle
- Design and development of 'Helder in Gesprek': A tool to support person-centred communication in memory clinics.Digital healthArticle
Corrections and comments
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Authors and funding
14 authors at 10 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWe studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations.
methodsAudio recordings of clinician-patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content-coded by two coders. The coding scheme encompassed 25 informational topics.
resultsApproximately half (
conclusionMost patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.