ArticleEpilepsy & behavior : E&B2021
Evaluating risk to people with epilepsy during the COVID-19 pandemic: Preliminary findings from the COV-E study.
Article in Epilepsy & behavior : E&B, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 52 citations in OpenAlex.
- Epilepsy and the risk of severe coronavirus disease 2019 outcomes: A systematic review, meta-analysis, and meta-regression.Epilepsy & behavior : E&B · 2021Pooled it
- Chronic emotional stress and mediating role of Interleukin-6 in the association with cardiometabolic disorders in a multiethnic middle-aged and older US population.International journal of cardiology. Cardiovascular risk and prevention · 2025Article
- Impact of the COVID-19 Pandemic on Seizure Control in Pediatric Epilepsy: Risk Factors and Clinical Outcomes.Healthcare (Basel, Switzerland) · 2025Article
- The impact of COVID-19 on people with epilepsy: Global results from the coronavirus and epilepsy study.Epilepsia open · 2024Article
- Article
- Children with medical complexities: their distinct vulnerability in health systems' Covid-19 response and their claims of justice in the recovery phase.Medicine, health care, and philosophy · 2023Article
- Incidence of Epilepsy and Seizures Over the First 6 Months After a COVID-19 Diagnosis: A Retrospective Cohort Study.Neurology · 2023Article
- Healthcare resource allocation decisions and non-emergency treatments in the aftermath of Covid-19 pandemic. How should children with chronic illness feature in prioritisation processes?Wellcome open research · 2023Article
- Interaction between COVID-19 and epilepsy during the omicron surge: A cross-sectional survey conducted in China tertiary hospital.Epilepsy & behavior reports · 2023Article
- Post-9/11 veterans perceptions of the pandemic: Areas of greatest impact on health and well-being.PEC innovation · 2022Article
- Review
- Impact of the COVID-19 pandemic on people with epilepsy: findings from the US arm of the COV-E study.Epilepsia open · 2022Article
- Seizure control during the COVID-19 pandemic: Correlating Responsive Neurostimulation System data with patient reports.Clinical neurophysiology : official journal of the International Federation of Clinical Neurophysiology · 2022Article
- Self-care Behaviors and Technology Used During COVID-19: Systematic Review.JMIR human factors · 2022Review
- Epilepsy mortality in Wales during COVID-19.Seizure · 2022Article
- EEG as an indispensable tool during and after the COVID-19 pandemic: A review of tribulations and successes.Frontiers in neurology · 2022Review
- Evaluation and Treatment of Seizures and Epilepsy During the COVID-19 Pandemic.Current neurology and neuroscience reports · 2022Review
- COVID-19 prevalence and mortality in people with epilepsy: A nation-wide multicenter study.Epilepsy & behavior : E&B · 2021Article
- Healthy brain-muscle interface in epilepsy and COVID-19: Increased muscle effort is the alternative.Epilepsy & behavior : E&B · 2021Article
- Impact of the COVID-19 pandemic on people with epilepsy: Findings from the Brazilian arm of the COV-E study.Epilepsy & behavior : E&B · 2021Article
Corrections and comments
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Authors and funding
23 authors at 16 institutions in 11 countries.
Funding
Abstract
The COVID-19 pandemic has caused global anguish unparalleled in recent times. As cases rise, increased pressure on health services, combined with severe disruption to people's everyday lives, can adversely affect individuals living with chronic illnesses, including people with epilepsy. Stressors related to disruption to healthcare, finances, mental well-being, relationships, schooling, physical activity, and increased isolation could increase seizures and impair epilepsy self-management. We aim to understand the impact that COVID-19 has had on the health and well-being of people with epilepsy focusing on exposure to increased risk of seizures, associated comorbidity, and mortality. We designed two online surveys with one addressing people with epilepsy directly and the second for caregivers to report on behalf of a person with epilepsy. The survey is ongoing and has yielded 463 UK-based responses by the end of September 2020. Forty percent of respondents reported health changes during the pandemic (n = 185). Respondents cited a change in seizures (19%, n = 88), mental health difficulties (34%, n = 161), and sleep disruption (26%, n = 121) as the main reasons. Thirteen percent found it difficult to take medication on time. A third had difficulty accessing medical services (n = 154), with 8% having had an appointment canceled (n = 39). Only a small proportion reported having had discussions about epilepsy-related risks, such as safety precautions (16%, n = 74); mental health (29%, n = 134); sleep (30%, n = 140); and Sudden Unexpected Death in Epilepsy (SUDEP; 15%, n = 69) in the previous 12 months. These findings suggest that people with epilepsy are currently experiencing health changes, coupled with inadequate access to services. Also, there seems to be a history of poor risk communication in the months preceding the pandemic. As the UK witnesses a second COVID-19 wave, those involved in healthcare delivery must ensure optimal care is provided for people with chronic conditions, such as epilepsy, to ensure that avoidable morbidity and mortality is prevented during the pandemic, and beyond.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.