ArticleJournal of family nursing2021
Family Caregiver Support of Patient Self-Management During Chronic, Life-Limiting Illness: A Qualitative Metasynthesis.
Article in Journal of family nursing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 3 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
39 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- mHealth To Promote Monitoring and Self-Regulation Among Caregivers of People With Dementia: A Systematic Review.PsyCh journal · 2026Pooled it
- Self-care towards the end of life: A systematic review and narrative synthesis on access, quality and cost.Palliative medicine · 2025Pooled it
- Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review.Frontiers in pediatrics · 2022Pooled it
- Efficacy of the "PalliActive Caregivers" intervention for caregivers of patients with cancer in palliative care.BMC palliative care · 2025Trial
- Contribution of informal caregivers in the self-care of patients with coronary artery disease: a descriptive cross-sectional study.BMC nursing · 2026Article
- Navigating isolation- barriers and multidimensional support needs in symptom self-management for HSCT patients within laminar airflow rooms: a descriptive qualitative study.BMC palliative care · 2026Article
- Effect of Continuity of Care Combined With Family Supportive Care on Cognitive Function and Self-Care Ability in Patients With Alzheimer's Disease.Actas espanolas de psiquiatria · 2026Article
- Identifying the pathways to increased death literacy: Building a conceptual causal model through a mixed-methods pragmatic ESC-DAGs approach.Palliative care and social practice · 2026Article
- Associations of family health and perceived social support with health literacy among middle-aged and older adults with chronic diseases: a mediation and network analysis.Frontiers in public health · 2026Article
- The experiences of physiotherapists regarding self-management practices for patients with non-specific chronic low back pain, South Africa: A qualitative study.The South African journal of physiotherapy · 2026Article
- Mediating Role of Dyadic Coping Between Social Support and Oral Frailty Cross-Sectional Study of Elderly Ovarian Cancer Patients in China.International journal of women's health · 2026Article
- Experiences of Social Isolation in Older Adults with Chronic Diseases: A Qualitative Study Based on Patients' Perspectives.Healthcare (Basel, Switzerland) · 2025Article
- "It's a delicate dance": How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma.Neuro-oncology practice · 2025Article
- Oral frailty and its influencing factors in patients with cancer undergoing chemotherapy: a cross-sectional study.BMC oral health · 2025Article
- Impact of family-oriented gamification on self-management of people with multiple sclerosis: a mixed-methods study protocol.BMJ open · 2025Article
- Patient and Caregiver Education to Support Self-Efficacy and Self-Management During Immunotherapy-An Integrative Review.Psycho-oncology · 2025Review
- Development and validation of the respite care model for adults with cancer in Iran: study protocol for a multimethod research project.BMJ open · 2025Article
- Why We Keep Going: A Qualitative Longitudinal Study of the Motivation and Engagement Among Patients with COPD During a Long-Term Danish Tele-Rehabilitation Program.Patient preference and adherence · 2025Article
- Lived experiences of older adults within an integrated hospital-at-home service: an interpretive phenomenological analysis.BMC nursing · 2024Article
- Living with long-term conditions: validation of a new instrument for family caregivers in a Spanish-speaking population.BMJ open · 2024Observational
Corrections and comments
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Authors and funding
9 authors.
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Abstract
Family caregivers play an integral role in supporting patient self-management, yet how they perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers' processes to support patient self-management of chronic, life-limiting illness and factors affecting their support. Methods included a systematic literature search, quality appraisal of articles, data abstraction, and data synthesis to produce novel themes. Thirty articles met inclusion criteria, representing 935 international family caregivers aged 18 to 89 years caring for patients with various health conditions. Three themes characterized family caregivers' processes to support patient self-management: "Focusing on the Patient's Illness Needs," "Activating Resources to Support Oneself as the Family Caregiver," and "Supporting a Patient Living with a Chronic, Life-Limiting Illness." Factors affecting family caregivers' support included Personal Characteristics, Health Status, Resources, Environmental Characteristics, and the Health Care System. The family caregiver role in supporting patient self-management is multidimensional, encompassing three processes of care and influenced by multiple factors.
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