Evidence map›Paper›PMID 33332195›Full record

ArticlePersonalized medicine2021

Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine.

Dana M Carroll, Carol Hernandez, Greg Braaten, Ellen Meier, Pamala Jacobson, Abbie Begnaud, Erin McGonagle, Linda Bane Frizzell, Dorothy K Hatsukami

Abstract read
In one paragraph

Article in Personalized medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Review
  3. Review
  4. Article
  5. Exploring Potential for a Personalized Medicine Approach to Smoking Cessation With an American Indian Tribe.Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco · 2023
    Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Dana M CarrollDivision of Environmental Health Sciences, School of Public Health, University of Minnesota.ORCID 0000-0002-4334-9515
Carol HernandezMinnesota Cancer Clinical Trials Network.
Greg BraatenMinnesota Cancer Clinical Trials Network.
Ellen MeierDepartment of Psychology, University of Wisconsin Stevens Point.
Pamala JacobsonMasonic Cancer Center, University of Minnesota.
Abbie BegnaudMasonic Cancer Center, University of Minnesota.ORCID 0000-0001-5634-1638
Erin McGonagleMasonic Cancer Center, University of Minnesota.
Linda Bane FrizzellSchool of Public Health, University of Minnesota.ORCID 0000-0002-9657-3051
Dorothy K HatsukamiMasonic Cancer Center, University of Minnesota.ORCID 0000-0002-1108-2609

Funding

Training in PharmacoNeuroImmune Substance Abuse ResearchT32DA007097 · NIDA · UNIVERSITY OF MINNESOTA TWIN CITIES · PI MOLITOR, THOMAS WILLIAM · 1985 to 2021
$13.1M
Laying the Foundation for Personalized Smoking Cessation Treatment in the American Indian PopulationK01MD014795 · NIMHD · UNIVERSITY OF MINNESOTA · PI CARROLL, DANA MOWLS · 2020 to 2024
$684k
NIDA NIH HHS T32 DA007097NIMHD NIH HHS K01 MD014795NIMHD NIH HHS K01MD014795
6 · The paper itself

Abstract

Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is critical to ensuring that personalized medicine discoveries do not widen AI/AN health disparities by only benefiting well-represented populations. One reason for the under-representation of AIs/ANs in research is warranted research distrust due to abuse of some AI/AN communities in research. An approach to easing the tension between protecting AI/AN communities and increasing the representation of AI/AN persons in genetic research is community-based participatory research. This approach was used in a collaboration between a tribe and academic researchers in efforts to increase AI/AN participation in genetic research. From the lessons learned, the authors propose recommendations to researchers that may aid in conducting collaborative and respectful research with AI/AN tribes/communities and ultimately assist in increasing representation of AIs/ANs in personalized medicine discoveries.

Indexed as

American Indian or Alaska NativeGenetic ResearchPrecision MedicineCommunity-Based Participatory ResearchCooperative BehaviorCultural CompetencyCultural DiversityHumansStakeholder ParticipationTrustUnited StatesAmerican Indians/Alaska Nativescommunity-based participatory researchethical issuesgeneticshealth disparitiespersonalized medicineracial/ethnic representation

Identifiers

PMID33332195
PMCPMC8242981

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.