Evidence map›Paper›PMID 33327960›Full record

ArticleBMC nursing2020

Older persons' thoughts about death and dying and their experiences of care in end-of-life: a qualitative study.

Johanna Tjernberg, Christina Bökberg

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC nursing, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02708498 (Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes), which is not on this map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
4.1field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02708498 nacompletednot on this map

Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes

TypeinterventionalSponsorLund UniversityRan2015 to 2017Enrolled1,151ConditionsAgeingArmsEducational Intervention
3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 41 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 1 institution in 1 country.

Johanna TjernbergDepartment of Health Sciences, Faculty of Medicine, Lund University, P.O. Box 157, SE-221 00, Lund, Sweden.
Christina BökbergDepartment of Health Sciences, Faculty of Medicine, Lund University, P.O. Box 157, SE-221 00, Lund, Sweden. christina.bokberg@med.lu.se.ORCID https://orcid.org/0000-0002-0821-1959
Lund University · SE

Funding

Vårdalstiftelsen 2014-0071Vetenskapsrådet 2014-2759
6 · The paper itself

Abstract

backgroundFew studies have focused on how older persons living in nursing homes perceive their last period of life. Furthermore, previous research on older persons' perceptions of death and dying is limited. Hence, there is an urgent need to explore their experiences during their final period in life.

aimTo explore thoughts about death and dying and experiences of care in end-of-life among older persons living in nursing homes.

methodsThis study employed a qualitative approach including individual interviews with 36 older persons living in Swedish nursing homes. Questions related to quality of life; physical health; thoughts about death, dying, and the future; and experiences related to the living condition and environment were asked. The interview transcripts were analysed through content analysis. The study was approved by the Regional Ethics Review Board (reference number: 2015/4).

resultsThe analysis resulted in the identification of three main thematic categories: The unavoidable and unknown end of life, Thoughts on control and Living your last period of life at a nursing home. The older persons did not fear death itself but had some worries about dying. Spending the last stage of life at a nursing home contributed to different thoughts and feelings among the older persons. With a few exceptions, older persons characterized life at the nursing home as boring and felt they were surrounded by people who did not belong there.

conclusionsThis study indicates a need for older persons to talk about death, dying and end-life issues. Furthermore, this study highlighted that the co-residence of cognitively healthy persons and persons with dementia in the same ward adversely affected cognitively healthy persons. This situation resulted in there being not enough time to both handle the care needs of persons with dementia and have the conversations that cognitively healthy persons desired, such as conversations about thoughts about existence, that could have improved their quality of life.

trial registrationNCT02708498 Date of registration 16 February 2016.

Indexed as

DeathDyingEnd-of-life careNursing homesOlder personsPalliative care

Identifiers

PMID33327960
PMCPMC7739469
OpenAlexW3112837154

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.