Evidence map›Paper›PMID 33325638›Full record

ReviewNephrology (Carlton, Vic.)2021

Patient-reported outcome measures ( PROMs): making sense of individual PROM scores and changes in PROM scores over time.

Esmee M van der Willik, Caroline B Terwee, Willem Jan W Bos, Marc H Hemmelder, Kitty J Jager, Carmine Zoccali, Friedo W Dekker, Yvette Meuleman

Open access · hybridAbstract readReview
In one paragraph

Review in Nephrology (Carlton, Vic.), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
53citing papers in PubMed, 2 pooled it
6.1field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

53 citing papers in PubMed, 2 syntheses or guidelines pooled it, 87 citations in OpenAlex.

  1. Pooled it
  2. Mapping health-related quality of life after kidney transplantation by group comparisons: a systematic review.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2021
    Pooled it
  3. Trial
  4. Article
  5. Responsiveness, Smallest Detectable Change, and Minimal Important Change of the Turkish Pelvic Floor Distress Inventory-20 Following Pelvic Floor Muscle Training.Physiotherapy research international : the journal for researchers and clinicians in physical therapy · 2026
    Article
  6. Article
  7. Article
  8. Article
  9. Development of a Core Patient-Reported Outcome (Measures) Set for Pediatric Physical Therapy.Pediatric physical therapy : the official publication of the Section on Pediatrics of the American Physical Therapy Association · 2026
    Article
  10. Measurement properties of the USER-Participation Restriction subscale and PROMISQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
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  13. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 2 countries.

Esmee M van der WillikDepartment of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.ORCID https://orcid.org/0000-0001-9457-5857
Caroline B TerweeDepartment of Epidemiology and Data Science, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Willem Jan W BosDepartment of Internal Medicine, Leiden University Medical Center, Leiden, The Netherlands.
Marc H HemmelderDepartment of Internal Medicine, Maastricht University Medical Center, Maastricht, The Netherlands.
Kitty J JagerERA-EDTA Registry, Department of Medical Informatics, Amsterdam UMC, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
Carmine ZoccaliCNR-IFC, Clinical Epidemiology and Physiopathology of Renal Diseases and Hypertension, Reggio Calabria, Italy.
Friedo W DekkerDepartment of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.
Yvette MeulemanDepartment of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.
Leiden University Medical Center · NLAmsterdam University Medical Centers · NLIstituto di Fisiologia Clinica · ITMaastricht University · NLPublic Health Service of Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care.

Indexed as

Patient Reported Outcome MeasuresHumansKidney DiseasesTime Factorsdata interpretationsminimal clinically important differencepatient-reported outcome measurespsychometricsquality of life

Identifiers

PMID33325638
PMCPMC8048666
OpenAlexW3112714684

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.