ArticleInternational journal of environmental research and public health2020
Parents' Experiences of the First Year at Home with an Infant Born Extremely Preterm with and without Post-Discharge Intervention: Ambivalence, Loneliness, and Relationship Impact.
Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03714633 (Stockholm Preterm Interaction-Based Intervention), which is not on this map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Stockholm Preterm Interaction-Based Intervention
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Mothers' experiences of feeding their premature infants after discharge from the hospital: a systematic review and thematic synthesis.International breastfeeding journal · 2026Pooled it
- The transition to motherhood: a qualitative study of new mothers' experiences of loneliness and associated challenges.International journal of qualitative studies on health and well-being · 2026Article
- Community-Based Follow-Up After NICU Discharge: A Practice-Focused Narrative Review of Nursing and Midwifery Care for Preterm Infants.Pediatric reports · 2026Review
- "NICU Doesn't Stop in the NICU": Maternal Perspectives of the Impact of a NICU Experience over Time.Behavioral sciences (Basel, Switzerland) · 2026Article
- Implementing Outpatient Therapeutic Playgroups for NICU Families: A Quality Improvement Project.Behavioral sciences (Basel, Switzerland) · 2026Article
- Article
- Empowering parents in early motor interventions for infants born preterm: insights from the Norwegian physical therapy study in preterm infants through the lens of a critical interpretative synthesis.Frontiers in psychology · 2026Review
- A Compassion-Focused Approach to Support Parents After Preterm Birth.Clinical child and family psychology review · 2025Review
- Psycho-emotional intervention with parents of very preterm babies during the first year: A single-arm pilot study.Family process · 2024Article
- Increased Survival Concomitant with Unchanged Morbidity and Cognitive Disability among Infants Born at the Limit of Viability before 24 Gestational Weeks in 2009-2019.Journal of clinical medicine · 2023Article
- A systematic synthesis of qualitative studies on parents' experiences of participating in early intervention programs with their infant born preterm.Frontiers in psychology · 2023Review
- Article
- Birth-related PTSD symptoms and related factors following preterm childbirth in Turkey.Current psychology (New Brunswick, N.J.) · 2022Article
- Parenting experiences of mothers of moderate-to-late preterm children in South Korea: a qualitative study.Child health nursing research · 2022Article
- Exploring Adjustment and Parent-Infant Relations in Mothers of Premature Infants: Thematic Analysis Using a Multisensory Approach.Journal of pediatric psychology · 2022Article
- Sleep patterns and psychosocial health of parents of preterm and full-born infants: a prospective, comparative, longitudinal feasibility study.BMC pregnancy and childbirth · 2022Article
- Enhancing Parents' Well-Being after Preterm Birth-A Qualitative Evaluation of the "Transition to Home" Model of Care.International journal of environmental research and public health · 2022Article
- Music Is Life-Follow-Up Qualitative Study on Parental Experiences of Creative Music Therapy in the Neonatal Period.International journal of environmental research and public health · 2021Article
- Special Issue: Preterm Birth: Research, Intervention and Developmental Outcomes.International journal of environmental research and public health · 2021Article
- Scoping review of interventions to support families with preterm infants post-NICU discharge.Journal of pediatric nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
With increasing survival rates of children born extremely preterm (EPT), before gestational week 28, the post-discharge life of these families has gained significant research interest. Quantitative studies of parental experiences post-discharge have previously reported elevated levels depressive symptoms, posttraumatic stress-disorder and anxiety among the parents. The current investigation aims to qualitatively explore the situation for parents of children born EPT in Sweden during the first year at home. Semi-structured interviews were performed with 17 parents of 14 children born EPT; eight parents were from an early intervention group and nine parents from a group that received treatment as usual, with extended follow-up procedures. Three main themes were identified using a thematic analytic approach: child-related concerns, the inner state of the parent, and changed family dynamics. Parents in the intervention group also expressed themes related to the intervention, as a sense of security and knowledgeable interventionists. The results are discussed in relation to different concepts of health, parent-child interaction and attachment, and models of the recovery processes. In conclusion, parents describe the first year at home as a time of prolonged parental worries for the child as well as concerns regarding the parent's own emotional state.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.