ArticleNursing open2021
Qualitative research on end-of-life communication with family carers in nursing homes: A discussion of methodological issues and challenges.
Article in Nursing open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Understanding the family caregivers' needs in late-stage dementia: a qualitative perspective to inform policy action.BMC geriatrics · 2026Article
- "ItResearch ethics · 2025Article
- Why the trial researcher matters: Day-to-day work viewed through the lens of normalization process theory.SSM. Qualitative research in health · 2023Article
- Giving and receiving thanks: a mixed methods pilot study of a gratitude intervention for palliative patients and their carers.BMC palliative care · 2023Article
- Measuring relatives' perceptions of end-of-life communication with physicians in five countries: a psychometric analysis.European journal of ageing · 2022Article
- Qualitative research on end-of-life communication with family carers in nursing homes: A discussion of methodological issues and challenges.Nursing open · 2021Article
- Learner experiences of a carer-focused massive open online course on psychosis: A qualitative study.Digital healthArticle
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Authors and funding
5 authors.
Funding
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Abstract
Aim: To identify and summarize the challenges of conducting qualitative research exploring end-of-life communication between healthcare providers and bereaved family carers in nursing homes. Design: A descriptive qualitative study based on in-the-field-notes and research diaries collected during a primary study involving 32 bereaved family carers and 14 nurses across 13 Italian nursing homes in 2018-2019. Methods: Two trained female nurses conducted semi-structured, in-depth, open-ended interviews and recorded "in action" (i.e. reflections reported as in-the-field-notes) and "on action" (i.e. retrospective reflections within the team reported immediately in the research diaries) narratives, with the aim of identifying challenges encountered during the research process. A content analysis process was performed to analyse the narratives collected. Results: We identified three major categories of challenges: (a) obtaining approval from the ethical committee; (b) approaching nursing homes and family carers; and (c) dealing with participant-related impairments (i.e. memory, emotional, physical).
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