Evidence map›Paper›PMID 33315254›Full record

ArticleThe Hastings Center report2020

Realizing Present and Future Promise of DIY Biology and Medicine through a Trust Architecture.

Lisa M Rasmussen, Christi J Guerrini, Todd Kuiken, Camille Nebeker, Alex Pearlman, Sarah B Ware, Anna Wexler, Patricia J Zettler

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Hastings Center report, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Lisa M Rasmussen
Christi J Guerrini
Todd Kuiken
Camille Nebeker
Alex Pearlman
Sarah B Ware
Anna Wexler
Patricia J Zettler

Funding

Do-it-Yourself and Direct-to-Consumer Medicine and Science: Assessing the Public Health Issues and Regulatory GapsDP5OD026420 · OD · UNIVERSITY OF PENNSYLVANIA · PI WEXLER, ANNA · 2018 to 2022
$2.0M
4/6 Planning for the HEALthy Early Development StudyR34DA050341 · NIDA · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI CHAMBERS, CHRISTINA · 2019 to 2020
$917k
Ownership Interests in Research Outputs of Genomic Citizen Science InitiativesK01HG009355 · NHGRI · BAYLOR COLLEGE OF MEDICINE · PI GUERRINI, CHRISTI · 2016 to 2019
$664k
National Human Genome Research Institute of the NIH K01-HG009355National Science Foundation #1937160National Science Foundation 2032598NHGRI NIH HHS K01 HG009355NIDA NIH HHS R34 DA050341NIH HHS DP5 OD026420NIH HHS R34DA050341Office of the Director at the National Institutes of Health DP5OD026420Open Philanthropy ProjectWalton Family Foundation
6 · The paper itself

Abstract

The speed and scale of the COVID-19 pandemic has highlighted the limits of current health systems and the potential promise of non-establishment research such as "DIY" research. We consider one example of how DIY research is responding to the pandemic, discuss the challenges faced by DIY research more generally, and suggest that a "trust architecture" should be developed now to contribute to successful future DIY efforts.

Indexed as

Diffusion of InnovationSelf EfficacySocial SupportCOVID-19Humansbiohackingcitizen sciencecommunity bioCovid-19DIY bioDIY biologyDIY medicinepandemicparticipant-led researchpersonal scienceresearch ethicstrust architecture

Identifiers

PMID33315254
PMCPMC8114871

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.