ArticleIndian journal of palliative care
Experiences of Caregivers in a Home-Based Palliative Care Model - A Qualitative Study.
Article in Indian journal of palliative care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 13 citations in OpenAlex.
- Referral and utilization patterns for home-based palliative care services among older adults.BMC palliative care · 2026Article
- Readiness for home-based palliative care among primary caregivers: an explanatory sequential mixed methods study.BMC palliative care · 2026Article
- The relationship between symptom severity of palliative care patients and caregiver readiness and strain levels.BMC palliative care · 2026Article
- Contexts, mechanisms and outcomes of home-based palliative care implementation in low- and middle-income countries: A realist review.Palliative care and social practice · 2026Review
- Development and psychometric evaluation of the needs assessment questionnaire for family caregivers of end-of-life older adults in home hospice care.Scientific reports · 2025Article
- "Don't leave us behind": a qualitative study exploring the feasibility of a palliative care training program for non-health caregivers in Honduras.Palliative care and social practice · 2025Article
- Voices of Resilience: Lived Realities and Challenges of Caregivers for Cancer Patients Receiving Palliative Care - A Qualitative Perspective.Indian journal of palliative careArticle
- Organising Home-based Palliative Care Services: A Quality Improvement project at the Homi Bhabha Cancer Hospital and Research Centre, Vishakhapatnam.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers are of vital support to patients receiving home-based palliative care. AIMS AND
objectivesThis study sought to identify and comprehend the challenges that caregivers face while taking care of a terminally ill patient in a home-based palliative care setting and the mechanisms that facilitated their coping. MATERIALS AND
methodsA qualitative approach was employed to understand the perceptions of primary caregivers through 3 focus group discussions and 4 in-depth interviews, across 3 socioeconomic categories and 3 geographic zones of Mumbai.
resultsCaregivers expressed that they wished they had been introduced to palliative care earlier. Being trained on minor clinical procedures and managing symptoms, and receiving emotional support through counselling were found beneficial. Caregivers did not perceive the need for self-care as the period of active caregiving was often short. Bereavement counselling was felt to be of much help.
conclusionThe study helped understand the caregivers' perceptions about the factors that would help them in patient as well as self-care. Recommendations for designing interventions for future caregivers and recipients were also made.
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