ArticleBMJ open2020
Patients' and kidney care team's perspectives of treatment burden and capacity in older people with chronic kidney disease: a qualitative study.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed, 32 citations in OpenAlex.
- Patient capacity and constraints in managing multimorbidity: a qualitative study in primary care settings in Kerala, India.BMC primary care · 2026Article
- Optimal patient care in advanced chronic kidney disease progressing to kidney failure.Nature reviews. Nephrology · 2026Review
- Educating, Contextualizing, and Deferring: Qualitative Investigation of Physician Communication About Chronic Kidney Disease.Healthcare (Basel, Switzerland) · 2026Article
- Evaluating Treatment Burden in Patients with Complex Needs Receiving a Transition of Care Intervention: A Rapid Qualitative Analysis.Clinical nursing research · 2026Article
- The role of social networks in supporting self-management in CKD: a narrative synthesis.BMC nephrology · 2025Review
- Experiences of Social Relationships for Adults Living With Multiple Long-Term Conditions: A Qualitative Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Medication review interventions for adults living with advanced chronic kidney disease: A scoping review.British journal of clinical pharmacology · 2025Article
- The role of peer support in coping and adjustment to dialysis and transplantation: Study protocol.PloS one · 2025Article
- Article
- Multimorbidity prevalence and patterns in chronic kidney disease: findings from an observational multicentre UK cohort study.International urology and nephrology · 2023Article
- Prevalence of chronic kidney disease in a city of Northwestern China: a cross-sectional study.International urology and nephrology · 2023Article
- Pill-burden and its association with treatment burden among patients with advanced stages of chronic kidney disease.Saudi pharmaceutical journal : SPJ : the official publication of the Saudi Pharmaceutical Society · 2023Article
- Article
- Patient and physician perspectives on treatment burden in end-stage kidney disease: a nominal group technique study.BMJ open · 2022Article
- Change in treatment burden among people with multimorbidity: a follow-up survey.The British journal of general practice : the journal of the Royal College of General Practitioners · 2022Article
- Understanding the patient experience of chronic kidney disease stages 2-3b: a qualitative interview study with Kidney Disease Quality of Life (KDQOL-36) debrief.BMC nephrology · 2022Article
- Diet in the management of non-dialysis dependent chronic kidney disease: perceptions and practices of health professionals.BMC nephrology · 2022Article
- [Long-term physical and psychological consequences of chronic kidney disease].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2022Review
- A systematic review of the use of burden of treatment theory.Journal of multimorbidity and comorbidityReview
Corrections and comments
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Authors and funding
10 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveChronic kidney disease (CKD) is often a multimorbid condition and progression to more severe disease is commonly associated with increased management requirements, including lifestyle change, more medication and greater clinician involvement. This study explored patients' and kidney care team's perspectives of the nature and extent of this workload (treatment burden) and factors that support capacity (the ability to manage health) for older individuals with CKD.
designQualitative semistructured interview and focus group study. SETTING AND
participantsAdults (aged 60+) with predialysis CKD stages G3-5 (identified in two general practitioner surgeries and two renal clinics) and a multiprofessional secondary kidney care team in the UK.
results29 individuals and 10 kidney team members were recruited. Treatment burden themes were: (1) understanding CKD, its treatment and consequences, (2) adhering to treatments and management and (3) interacting with others (eg, clinicians) in the management of CKD. Capacity themes were: (1) personal attributes (eg, optimism, pragmatism), (2) support network (family/friends, service providers), (3) financial capacity, environment (eg, geographical distance to unit) and life responsibilities (eg, caring for others). Patients reported poor provision of CKD information and lack of choice in treatment, whereas kidney care team members discussed health literacy issues. Patients reported having to withdraw from social activities and loss of employment due to CKD, which further impacted their capacity.
conclusionImproved understanding of and measures to reduce the treatment burden (eg, clear information, simplified medication, joined up care, free parking) associated with CKD in individuals as well as assessment of their capacity and interventions to improve capacity (social care, psychological support) will likely improve patient experience and their engagement with kidney care services.
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