ArticleBMC cardiovascular disorders2020
The emotional and social burden of heart failure: integrating physicians', patients', and caregivers' perspectives through narrative medicine.
Article in BMC cardiovascular disorders, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Caregiver burden in informal caregivers of cardiac patients: a mixed-methods systematic review.BMC psychology · 2026Pooled it
- Health-Related Quality of Life and Associated Factors in Patients with Heart Failure Across Three Ejection Fraction Categories: A Two-Center Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2026Article
- Article
- Validation of the short-form quality care questionnaire - palliative care in Brazilian patients with heart failure eligible for palliative care.BMC palliative care · 2026Article
- Health literacy, social support, and health activation as determinants of health-promoting behaviors in patients with chronic heart failure: a COM-B model-based path analysis.Frontiers in public health · 2026Article
- Current situation and associated factors of clinical narrative competence of nurses in selected hospitals in Guangxi, China: a cross-sectional study.Frontiers in medicine · 2026Article
- Narrative Medicine, Dementia, and Alzheimer's Disease: A Scoping Review.Healthcare (Basel, Switzerland) · 2025Review
- Quality of Life in Heart Failure Patients: The Effect of Anxiety and Depression (Patient-Caregiver) and Caregivers' Quality of Life.Journal of cardiovascular development and disease · 2025Article
- Narrative Medicine: theory, clinical practice and education - a scoping review.BMC health services research · 2024Article
- Development of a scale to gain insight into the experience of living with chronic heart failure: The UNAV-Experience of Living with Chronic Heart Failure Scale.Anales del sistema sanitario de Navarra · 2024Observational
- A machine learning-derived risk score to predict left ventricular diastolic dysfunction from clinical cardiovascular magnetic resonance imaging.Frontiers in cardiovascular medicine · 2024Article
- Narrative Medicine: A Digital Diary in the Management of Patients with Bone and Soft Tissue Sarcoma-A Multidisciplinary Pilot Study.Journal of clinical medicine · 2023Article
- Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post-hospital discharge period.Research involvement and engagement · 2023Review
- Symptom burden, psychosocial distress and palliative care needs in heart failure - A cross-sectional explorative pilot study.Clinical research in cardiology : official journal of the German Cardiac Society · 2023Article
- Burden among informal caregivers of individuals with heart failure: A mixed methods study.PloS one · 2023Article
- Narrative medicine: feasibility of a digital narrative diary application in oncology.The Journal of international medical research · 2022Article
- Palliative Care and Heart Failure Services: Mapping National Data to Inform Policy and Service Provision.The Journal of cardiovascular nursingArticle
- Studying gender in the experiences of patients with heart failure: A scoping review of qualitative studies and methodological recommendations.Women's health (London, England)Article
Corrections and comments
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Authors and funding
8 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe The Roadmap Using Story Telling project used a narrative medicine (NM) framework to assess the perspectives of people with heart failure (HF), their informal caregivers and HF specialists of the impact of HF on the daily life of patients and their carers.
methodsItalian HF specialists participated on a voluntary basis, completing their own narratives, and inviting patients and their caregivers to write anonymously about their experiences, all on a dedicated online platform. The narratives were analyzed according to standard NM methodology.
results82 narratives were collected from patients, 61 from caregivers, and 104 from HF specialists. Analysis of the three points of view revealed the extent of the burden of illness on the entire family, particularly that of the caregiver. The impact was mainly experienced as emotional and social limitations in patients' and their caregivers' daily lives. The analysis of all three points of view highlighted a strong difference between how HF is perceived by patients, caregivers, and HF specialists.
conclusionsThis NM project illustrates the complex issues of living with HF and gave insights to integrate three different perspectives into the HF pathway of care.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.